Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties

Christine Resch, Mette Van Kruijsbergen, Marjolijn Ketelaar, Petra Hurks, Brooke Adair, Christine Imms, Arend De Kloet, Barbara Piskur, Caroline Van Heugten*

*Corresponding author for this work

Research output: Contribution to journalReview articleAcademicpeer-review

Abstract

Aim: To examine which instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) align with attendance and/or involvement constructs of participation; and to systematically review measurement properties of these instruments in children with ABI or CP, to guide instrument selection.
Metho: Five databases were searched. Instruments that quantified ‘attendance’ and/or ‘involvement’ aspects of participation according to the family of participation‐related constructs were selected. Data on measurement properties were extracted and methodological quality of the studies assessed.
Results: Thirty‐seven instruments were used to assess participation in children with ABI or CP. Of those, 12 measured attendance and/or involvement. The reliability, validity, and responsiveness of eight of these instruments were examined in 14 studies with children with ABI or CP. Sufficient measurement properties were reported for most of the measures, but no instrument had been assessed on all relevant properties. Moreover, most psychometric studies have marked methodological limitations.
Interpretation: Instruments to assess participation of children with ABI or CP should be selected carefully, as many available measures do not align with attendance and/or involvement. Evidence for measurement properties is limited, mainly caused by low methodological study quality. Future studies should follow recommended methodological guidelines.
Original languageEnglish
Pages (from-to)434-444
Number of pages11
JournalDevelopmental Medicine and Child Neurology
Volume62
Issue number4
Early online date23 Jan 2020
DOIs
Publication statusPublished - Apr 2020

Keywords

  • PSYCHOMETRIC PROPERTIES
  • CLINIMETRIC PROPERTIES
  • ADOLESCENT SCALE
  • YOUNG-CHILDREN
  • HEALTH-STATUS
  • DAILY-LIFE
  • YOUTH
  • QUESTIONNAIRE
  • DISABILITY
  • OUTCOMES

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