Wat als de zaaddonor een erfelijke ziekte heeft? Informed consent nodig voor uitwisse ling medische informatie

Jasper J. Van Der Smagt; Lutgarde C. Govaerts; Suzanna G.M. Frints

Wat als de zaaddonor een erfelijke ziekte heeft? Informed consent nodig voor uitwisse ling medische informatie

Translated title of the contribution: What if the sperm donor has a hereditary disease? Informed consent needed for sharing medical information

Jasper J. Van Der Smagt^*, Lutgarde C. Govaerts, Suzanna G.M. Frints

^*Corresponding author for this work

Research output: Contribution to journal › (Systematic) Review article › peer-review

Abstract

There are no regulations in the Netherlands regarding the exchange of important genetic information that has become available after the birth of a child conceived with donor gametes. This may lead to difficult situations such as when the gamete donor is found to suffer from a genetic cancerpredisposition disorder. Genetic information about the donor that becomes available later may be of great importance to donor offspring. Genetic information uncovered in the donor child may likewise be of importance to legal offspring of the gamete donor. We propose an informedconsent procedure for both donors and recipients to take better care of this issue.

Translated title of the contribution	What if the sperm donor has a hereditary disease? Informed consent needed for sharing medical information
Original language	Dutch
Article number	D1445
Journal	Nederlands Tijdschrift voor Geneeskunde
Volume	161
Issue number	32
Publication status	Published - 1 Jan 2017

Cite this

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abstract = "There are no regulations in the Netherlands regarding the exchange of important genetic information that has become available after the birth of a child conceived with donor gametes. This may lead to difficult situations such as when the gamete donor is found to suffer from a genetic cancerpredisposition disorder. Genetic information about the donor that becomes available later may be of great importance to donor offspring. Genetic information uncovered in the donor child may likewise be of importance to legal offspring of the gamete donor. We propose an informedconsent procedure for both donors and recipients to take better care of this issue.",

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Wat als de zaaddonor een erfelijke ziekte heeft? Informed consent nodig voor uitwisse ling medische informatie

Abstract

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