@article{10c3859c481049a5a566f303adb5df1d,
title = "Risk factors of unmet needs among women with breast cancer in the post-treatment phase",
abstract = "Objective Unmet health care needs require additional care resources to achieve optimal patient well-being. In this nationwide study we examined associations between a number of risk factors and unmet needs after treatment among women with breast cancer, while taking into account their health care practices. We expected that more care use would be associated with lower levels of unmet needs. Methods A multicenter, prospective, observational design was employed. Women with primary breast cancer completed questionnaires 6 and 15 months post-diagnosis. Medical data were retrieved from medical records. Direct and indirect associations between sociodemographic and clinical risk factors, distress, care use, and unmet needs were investigated with structural equation modeling. Results Seven hundred forty-six participants completed both questionnaires (response rate 73.7%). The care services received were not negatively associated with the reported levels of unmet needs after treatment. Comorbidity was associated with higher physical and daily living needs. Higher age was associated with higher health system-related and informational needs. Having had chemotherapy and a mastectomy were associated with higher sexuality needs and breast cancer-specific issues, respectively. A higher level of distress was associated with higher levels of unmet need in all domains. Conclusions Clinicians may use these results to timely identify which women are at risk of developing specific unmet needs after treatment. Evidence-based, cost-effective (online) interventions that target distress, the most influential risk factor, should be further implemented and disseminated among patients and clinicians.",
keywords = "cancer, distress, needs assessment, oncology, women with breast cancer, SUPPORTIVE CARE NEEDS, PSYCHOLOGICAL DISTRESS, PERCEIVED NEEDS, HEALTH-CARE, SERVICE USE, PREDICTORS, SURVIVORS, PREVALENCE",
author = "Lo-Fo-Wong, {Deborah N. N.} and {de Haes}, {Hanneke C. J. M.} and Aaronson, {Neil K.} and {van Abbema}, {Doris L.} and {den Boer}, {Mathilda D.} and {van Hezewijk}, Marjan and Marcelle Immink and Kaptein, {Ad A.} and Menke-Pluijmers, {Marian B. E.} and Reyners, {Anna K. L.} and Russell, {Nicola S.} and Manon Schriek and Sieta Sijtsema and {van Tienhoven}, Geertjan and Verdam, {Mathilde G. E.} and Sprangers, {Mirjam A. G.}",
note = "Funding Information: We thank all the women who were willing to participate. We thank all care providers and researchers who contributed to this study. We especially thank Corry Marijnen (LUMC); Joyce Roijen, Annemie Courtens (MUMC); Sjane Olsthoorn (Erasmus MC ‐ Cancer Institute); Mary‐Ann Thoms, Irma van Gelderen (Reinier de Graaf Hospital); Jan Anne Roukema (St. Elisabeth Hospital); Jolien Admiraal, Wieke Huisman‐de Haan, Greetje Akerboom, Hennie Wilpstra‐Dijkema, John Maduro (UMCG); Ingrid de Vries, Petra Duijveman, Marieke van de Grootevheen, Arjan van Hoorn, Sanne van Munster (UMCU); Pietje Muller, Susanne Kuiper (NKI‐AVL); and Kate Sitnikova, Jane van der Vloodt, Maha van der Plas, Linde Mollers, Anke Edink, Esmee van Vliet, Jeroen Gomes, Elvira Don, Rob van Os (AMC). This study was supported by Pink Ribbon, the Netherlands (grant number 2009.PS.C50). The funding source had no role in the design, conduct, or reporting of this study, or in the decision to submit the manuscript for publication. Funding Information: We thank all the women who were willing to participate. We thank all care providers and researchers who contributed to this study. We especially thank Corry Marijnen (LUMC); Joyce Roijen, Annemie Courtens (MUMC); Sjane Olsthoorn (Erasmus MC - Cancer Institute); Mary-Ann Thoms, Irma van Gelderen (Reinier de Graaf Hospital); Jan Anne Roukema (St. Elisabeth Hospital); Jolien Admiraal, Wieke Huisman-de Haan, Greetje Akerboom, Hennie Wilpstra-Dijkema, John Maduro (UMCG); Ingrid de Vries, Petra Duijveman, Marieke van de Grootevheen, Arjan van Hoorn, Sanne van Munster (UMCU); Pietje Muller, Susanne Kuiper (NKI-AVL); and Kate Sitnikova, Jane van der Vloodt, Maha van der Plas, Linde Mollers, Anke Edink, Esmee van Vliet, Jeroen Gomes, Elvira Don, Rob van Os (AMC). This study was supported by Pink Ribbon, the Netherlands (grant number 2009.PS.C50). The funding source had no role in the design, conduct, or reporting of this study, or in the decision to submit the manuscript for publication. Publisher Copyright: {\textcopyright} 2019 The Authors. Psycho-Oncology published by John Wiley & Sons Ltd.",
year = "2020",
month = mar,
doi = "10.1002/pon.5299",
language = "English",
volume = "29",
pages = "539--549",
journal = "Psycho-Oncology",
issn = "1057-9249",
publisher = "John Wiley & Sons Inc.",
number = "3",
}