'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1

Dirk-Jan van Beek, Rachel S. van Leeuwaarde, Carolina R. C. Pieterman, Menno R. Vriens, Gerlof D. Valk*, P. H. Bisschop, I. H. M. Borel Rinkes, O. M. Dekkers, M. L. Drent, B. Havekes, W. W. de Herder, A. R. M. M. Hermus, A. N. A. van der Horst-Schrivers, J. de Jong, H. F. A. Vasen, B. A. Zonnenberg, DutchMEN Study Grp

*Corresponding author for this work

Research output: Contribution to journalReview articleAcademicpeer-review

Original languageEnglish
Pages (from-to)R260-R274
Number of pages15
JournalEndocrine Connections
Volume7
Issue number11
DOIs
Publication statusPublished - 1 Nov 2018

Keywords

  • multiple endocrine neoplasia type 1
  • hereditary tumor syndrome
  • research strategies
  • database
  • observational studies
  • PANCREATIC NEUROENDOCRINE TUMORS
  • TERM NATURAL COURSE
  • MEN1 PATIENTS
  • GUIDELINES
  • DIAGNOSIS
  • SURVIVAL
  • TRIALS
  • COHORT

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