'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1

Dirk-Jan van Beek, Rachel S. van Leeuwaarde, Carolina R. C. Pieterman, Menno R. Vriens, Gerlof D. Valk, P. H. Bisschop, I. H. M. Borel Rinkes, O. M. Dekkers, M. L. Drent, B. Havekes, W. W. de Herder, A. R. M. M. Hermus, A. N. A. van der Horst-Schrivers, J. de Jong, H. F. A. Vasen, B. A. Zonnenberg, DutchMEN Study Grp

Research output: Contribution to journalReview articlepeer-review

Original languageEnglish
Pages (from-to)R260-R274
Number of pages15
JournalEndocrine Connections
Volume7
Issue number11
DOIs
Publication statusPublished - 1 Nov 2018

Keywords

  • multiple endocrine neoplasia type 1
  • hereditary tumor syndrome
  • research strategies
  • database
  • observational studies
  • PANCREATIC NEUROENDOCRINE TUMORS
  • TERM NATURAL COURSE
  • MEN1 PATIENTS
  • GUIDELINES
  • DIAGNOSIS
  • SURVIVAL
  • TRIALS
  • COHORT

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