'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1

Dirk-Jan van Beek; Rachel S. van Leeuwaarde; Carolina R. C. Pieterman; Menno R. Vriens; Gerlof D. Valk; P. H. Bisschop; I. H. M. Borel Rinkes; O. M. Dekkers; M. L. Drent; B. Havekes; W. W. de Herder; A. R. M. M. Hermus; A. N. A. van der Horst-Schrivers; J. de Jong; H. F. A. Vasen; B. A. Zonnenberg; DutchMEN Study Grp

doi:10.1530/EC-18-0359

'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1

Dirk-Jan van Beek, Rachel S. van Leeuwaarde, Carolina R. C. Pieterman, Menno R. Vriens, Gerlof D. Valk^*, P. H. Bisschop, I. H. M. Borel Rinkes, O. M. Dekkers, M. L. Drent, B. Havekes, W. W. de Herder, A. R. M. M. Hermus, A. N. A. van der Horst-Schrivers, J. de Jong, H. F. A. Vasen, B. A. Zonnenberg, DutchMEN Study Grp

^*Corresponding author for this work

Research output: Contribution to journal › Review article › Academic › peer-review

Original language	English
Pages (from-to)	R260-R274
Number of pages	15
Journal	Endocrine Connections
Volume	7
Issue number	11
DOIs	https://doi.org/10.1530/EC-18-0359
Publication status	Published - 1 Nov 2018

Keywords

multiple endocrine neoplasia type 1
hereditary tumor syndrome
research strategies
database
observational studies
PANCREATIC NEUROENDOCRINE TUMORS
TERM NATURAL COURSE
MEN1 PATIENTS
GUIDELINES
DIAGNOSIS
SURVIVAL
TRIALS
COHORT

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Cite this

van Beek, D-J., van Leeuwaarde, R. S., Pieterman, C. R. C., Vriens, M. R., Valk, G. D., Bisschop, P. H., Rinkes, I. H. M. B., Dekkers, O. M., Drent, M. L., Havekes, B., de Herder, W. W., Hermus, A. R. M. M., van der Horst-Schrivers, A. N. A., de Jong, J., Vasen, H. F. A., Zonnenberg, B. A., & DutchMEN Study Grp (2018). 'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1. Endocrine Connections , 7(11), R260-R274. https://doi.org/10.1530/EC-18-0359

van Beek, Dirk-Jan ; van Leeuwaarde, Rachel S. ; Pieterman, Carolina R. C. ; Vriens, Menno R. ; Valk, Gerlof D. ; Bisschop, P. H. ; Rinkes, I. H. M. Borel ; Dekkers, O. M. ; Drent, M. L. ; Havekes, B. ; de Herder, W. W. ; Hermus, A. R. M. M. ; van der Horst-Schrivers, A. N. A. ; de Jong, J. ; Vasen, H. F. A. ; Zonnenberg, B. A. ; DutchMEN Study Grp. / 'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1. In: Endocrine Connections . 2018 ; Vol. 7, No. 11. pp. R260-R274.

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title = "'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1",

keywords = "multiple endocrine neoplasia type 1, hereditary tumor syndrome, research strategies, database, observational studies, PANCREATIC NEUROENDOCRINE TUMORS, TERM NATURAL COURSE, MEN1 PATIENTS, GUIDELINES, DIAGNOSIS, SURVIVAL, TRIALS, COHORT",

author = "{van Beek}, Dirk-Jan and {van Leeuwaarde}, {Rachel S.} and Pieterman, {Carolina R. C.} and Vriens, {Menno R.} and Valk, {Gerlof D.} and Bisschop, {P. H.} and Rinkes, {I. H. M. Borel} and Dekkers, {O. M.} and Drent, {M. L.} and B. Havekes and {de Herder}, {W. W.} and Hermus, {A. R. M. M.} and {van der Horst-Schrivers}, {A. N. A.} and {de Jong}, J. and Vasen, {H. F. A.} and Zonnenberg, {B. A.} and {DutchMEN Study Grp}",

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month = nov,

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doi = "10.1530/EC-18-0359",

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van Beek, D-J, van Leeuwaarde, RS, Pieterman, CRC, Vriens, MR, Valk, GD, Bisschop, PH, Rinkes, IHMB, Dekkers, OM, Drent, ML, Havekes, B, de Herder, WW, Hermus, ARMM, van der Horst-Schrivers, ANA, de Jong, J, Vasen, HFA, Zonnenberg, BA & DutchMEN Study Grp 2018, ''Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1', Endocrine Connections , vol. 7, no. 11, pp. R260-R274. https://doi.org/10.1530/EC-18-0359

'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1. / van Beek, Dirk-Jan; van Leeuwaarde, Rachel S.; Pieterman, Carolina R. C.; Vriens, Menno R.; Valk, Gerlof D.; Bisschop, P. H.; Rinkes, I. H. M. Borel; Dekkers, O. M.; Drent, M. L.; Havekes, B.; de Herder, W. W.; Hermus, A. R. M. M.; van der Horst-Schrivers, A. N. A.; de Jong, J.; Vasen, H. F. A.; Zonnenberg, B. A.; DutchMEN Study Grp.

In: Endocrine Connections , Vol. 7, No. 11, 01.11.2018, p. R260-R274.

Research output: Contribution to journal › Review article › Academic › peer-review

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T1 - 'Quality in, quality out', a stepwise approach to evidence-based medicine for rare diseases promoted by multiple endocrine neoplasia type 1

AU - van Beek, Dirk-Jan

AU - van Leeuwaarde, Rachel S.

AU - Pieterman, Carolina R. C.

AU - Vriens, Menno R.

AU - Valk, Gerlof D.

AU - Bisschop, P. H.

AU - Rinkes, I. H. M. Borel

AU - Dekkers, O. M.

AU - Drent, M. L.

AU - Havekes, B.

AU - de Herder, W. W.

AU - Hermus, A. R. M. M.

AU - van der Horst-Schrivers, A. N. A.

AU - de Jong, J.

AU - Vasen, H. F. A.

AU - Zonnenberg, B. A.

AU - DutchMEN Study Grp

PY - 2018/11/1

Y1 - 2018/11/1

KW - multiple endocrine neoplasia type 1

KW - hereditary tumor syndrome

KW - research strategies

KW - database

KW - observational studies

KW - PANCREATIC NEUROENDOCRINE TUMORS

KW - TERM NATURAL COURSE

KW - MEN1 PATIENTS

KW - GUIDELINES

KW - DIAGNOSIS

KW - SURVIVAL

KW - TRIALS

KW - COHORT

U2 - 10.1530/EC-18-0359

DO - 10.1530/EC-18-0359

M3 - Review article

C2 - 30352412

VL - 7

SP - R260-R274

JO - Endocrine Connections

JF - Endocrine Connections

SN - 2049-3614

IS - 11

ER -