Population Characteristics and Needs of Informal Caregivers Associated With the Risk of Perceiving a High Burden: A Cross-Sectional Study

Lotte Prevo*, KlaasJan Hajema, Evelyne Linssen, Stef Kremers, Rik Crutzen, Francine Schneider

*Corresponding author for this work

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6 Citations (Web of Science)


This study explored the population characteristics and needs of informal caregivers reporting a low or high burden. A cross-sectional study was conducted in the Netherlands to explore the associations between the characteristics and needs of informal caregivers and the burden they perceive and to assess the variance in perceived burdens that is explained by these variables. Three thousand sixty-seven adult informal caregivers and 1936 senior informal caregivers participated, almost 15% of whom perceived a high burden. Particularly caregivers in the 40 to 54 age group perceived a high burden, while caregivers with an intermediate educational level reported a low burden. Higher burden was also reported by caregivers who spent more time on the care provision tasks, had a high level of depressive symptoms, or reported loneliness. The explored variables seem to be important to explain caregiver burden. Longitudinal research is warranted to establish the causal directions of these associations.

Original languageEnglish
Article number0046958018775570
Number of pages13
JournalInquiry-The Journal of Health Care Organization Provision and Financing
Publication statusPublished - 29 May 2018


  • informal caregivers
  • perceived burden
  • cross-sectional study
  • population characteristics
  • needs
  • CARE

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