Abstract
Diabetes is one of the most prevalent chronic diseases and necessitates ongoing self-management to control symptoms. People with diabetes (PWD) express various needs, which are often met in online support groups. Our objectives were to examine related discourse in Hungarian Facebook groups in order to map the content and structure of information PWD are sharing. We aimed to juxtapose our findings with the functionality of eHealth tools available to Hungarian patients to understand what these tools may be lacking. We extracted a total of 200 threads from two public self-help groups. Codes were developed inductively and applied to the entire corpus with the Interface for the Reproducible Open Coding Kit. We used Epistemic Network Analysis to model our data. The mean network of the entire dataset indicates that discourse was chiefly centered on providing help regarding lifestyle-related issues, especially diet. Critical facets of discourse included the need by experienced PWD to provide guidance to the newly diagnosed, share “street-level” knowledge on diabetes, and ensure a sense of support and community. Existing eHealth tools could be supplemented with an app that automatically downloads blood glucose meter measurements, warns patients about predicted high glucose levels, enables location-based information exchange, and promotes social support in adhering to diet and exercise. Ideally, this app would connect patients with their physicians and/or dietitians.
Original language | English |
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Title of host publication | Advances in Quantitative Ethnography |
Subtitle of host publication | 3rd International Conference, ICQE 2021, Proceedings |
Editors | Barbara Wasson, Szilvia Zörgo |
Publisher | Springer |
Pages | 221-236 |
Number of pages | 16 |
Volume | 1522 CCIS |
ISBN (Electronic) | 9783030938598 |
ISBN (Print) | 9783030938581 |
DOIs | |
Publication status | Published - 1 Jan 2022 |
Event | 3rd International Conference on Quantitative Ethnography - Online, Unknown Duration: 6 Nov 2021 → 11 Nov 2021 Conference number: 3 https://www.icqe21.org/ |
Publication series
Series | Communications in Computer and Information Science |
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Volume | 1522 CCIS |
ISSN | 1865-0929 |
Conference
Conference | 3rd International Conference on Quantitative Ethnography |
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Abbreviated title | ICQE 2021 |
Country/Territory | Unknown |
Period | 6/11/21 → 11/11/21 |
Internet address |
Keywords
- Diabetes
- eHealth
- Epistemic Network Analysis (ENA)
- Reproducible Open Coding Kit (ROCK)
- Social media