How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Julia Spierings*, Cornelia H M van den Ende, Rita M Schriemer, Hein J Bernelot Moens, Egon A van der Bijl, Femke Bonte-Mineur, Marieke P D de Buck, Meeke A E de Kanter, Hanneke K A Knaapen-Hans, Jacob M van Laar, Udo D J Mulder, Judith Potjewijd, Lian A J de Pundert, Thea H M Schoonbrood, Anne A Schouffoer, Alja J Stel, Ward Vercoutere, Alexandre E Voskuyl, Jeska K de Vries-Bouwstra, Madelon C Vonk

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Original languageEnglish
Pages (from-to)1226-1232
Number of pages7
JournalRheumatology
Volume59
Issue number6
Early online date20 Sep 2019
DOIs
Publication statusPublished - Jun 2020

Keywords

  • systemic sclerosis
  • healthcare organization
  • quality of care
  • quality indicators
  • patients
  • perspective
  • patient-reported outcome measurement
  • OUTCOME MEASURES
  • SCLERODERMA
  • GUIDELINES
  • NEEDS
  • SET

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