How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Julia Spierings; Cornelia H M van den Ende; Rita M Schriemer; Hein J Bernelot Moens; Egon A van der Bijl; Femke Bonte-Mineur; Marieke P D de Buck; Meeke A E de Kanter; Hanneke K A Knaapen-Hans; Jacob M van Laar; Udo D J Mulder; Judith Potjewijd; Lian A J de Pundert; Thea H M Schoonbrood; Anne A Schouffoer; Alja J Stel; Ward Vercoutere; Alexandre E Voskuyl; Jeska K de Vries-Bouwstra; Madelon C Vonk

doi:10.1093/rheumatology/kez417

How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Julia Spierings^*, Cornelia H M van den Ende, Rita M Schriemer, Hein J Bernelot Moens, Egon A van der Bijl, Femke Bonte-Mineur, Marieke P D de Buck, Meeke A E de Kanter, Hanneke K A Knaapen-Hans, Jacob M van Laar, Udo D J Mulder, Judith Potjewijd, Lian A J de Pundert, Thea H M Schoonbrood, Anne A Schouffoer, Alja J Stel, Ward Vercoutere, Alexandre E Voskuyl, Jeska K de Vries-Bouwstra, Madelon C Vonk

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

4 Citations (Web of Science)

Original language	English
Pages (from-to)	1226-1232
Number of pages	7
Journal	Rheumatology
Volume	59
Issue number	6
Early online date	20 Sep 2019
DOIs	https://doi.org/10.1093/rheumatology/kez417
Publication status	Published - Jun 2020

Keywords

systemic sclerosis
healthcare organization
quality of care
quality indicators
patients
perspective
patient-reported outcome measurement
OUTCOME MEASURES
SCLERODERMA
GUIDELINES
NEEDS
SET

Access to Document

10.1093/rheumatology/kez417Licence: CC BY-NC

Cite this

Spierings, J., van den Ende, C. H. M., Schriemer, R. M., Moens, H. J. B., van der Bijl, E. A., Bonte-Mineur, F., de Buck, M. P. D., de Kanter, M. A. E., Knaapen-Hans, H. K. A., van Laar, J. M., Mulder, U. D. J., Potjewijd, J., de Pundert, L. A. J., Schoonbrood, T. H. M., Schouffoer, A. A., Stel, A. J., Vercoutere, W., Voskuyl, A. E., de Vries-Bouwstra, J. K., & Vonk, M. C. (2020). How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality? Rheumatology, 59(6), 1226-1232. https://doi.org/10.1093/rheumatology/kez417

Spierings, Julia ; van den Ende, Cornelia H M ; Schriemer, Rita M ; Moens, Hein J Bernelot ; van der Bijl, Egon A ; Bonte-Mineur, Femke ; de Buck, Marieke P D ; de Kanter, Meeke A E ; Knaapen-Hans, Hanneke K A ; van Laar, Jacob M ; Mulder, Udo D J ; Potjewijd, Judith ; de Pundert, Lian A J ; Schoonbrood, Thea H M ; Schouffoer, Anne A ; Stel, Alja J ; Vercoutere, Ward ; Voskuyl, Alexandre E ; de Vries-Bouwstra, Jeska K ; Vonk, Madelon C. / How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?. In: Rheumatology. 2020 ; Vol. 59, No. 6. pp. 1226-1232.

@article{d0e6fafdefc7418e916ec63958f84a3e,

title = "How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?",

keywords = "systemic sclerosis, healthcare organization, quality of care, quality indicators, patients, perspective, patient-reported outcome measurement, OUTCOME MEASURES, SCLERODERMA, GUIDELINES, NEEDS, SET",

author = "Julia Spierings and {van den Ende}, {Cornelia H M} and Schriemer, {Rita M} and Moens, {Hein J Bernelot} and {van der Bijl}, {Egon A} and Femke Bonte-Mineur and {de Buck}, {Marieke P D} and {de Kanter}, {Meeke A E} and Knaapen-Hans, {Hanneke K A} and {van Laar}, {Jacob M} and Mulder, {Udo D J} and Judith Potjewijd and {de Pundert}, {Lian A J} and Schoonbrood, {Thea H M} and Schouffoer, {Anne A} and Stel, {Alja J} and Ward Vercoutere and Voskuyl, {Alexandre E} and {de Vries-Bouwstra}, {Jeska K} and Vonk, {Madelon C}",

note = "{\textcopyright} The Author(s) 2019. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For permissions, please email: journals.permissions@oup.com.",

year = "2020",

month = jun,

doi = "10.1093/rheumatology/kez417",

language = "English",

volume = "59",

pages = "1226--1232",

journal = "Rheumatology",

issn = "1462-0324",

publisher = "Oxford University Press",

number = "6",

}

Spierings, J, van den Ende, CHM, Schriemer, RM, Moens, HJB, van der Bijl, EA, Bonte-Mineur, F, de Buck, MPD, de Kanter, MAE, Knaapen-Hans, HKA, van Laar, JM, Mulder, UDJ, Potjewijd, J, de Pundert, LAJ, Schoonbrood, THM, Schouffoer, AA, Stel, AJ, Vercoutere, W, Voskuyl, AE, de Vries-Bouwstra, JK & Vonk, MC 2020, 'How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?', Rheumatology, vol. 59, no. 6, pp. 1226-1232. https://doi.org/10.1093/rheumatology/kez417