TY - JOUR
T1 - Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic
T2 - longitudinal improvements on social functioning and fatigue
AU - Vlooswijk, Carla
AU - Janssen, Silvie H.M.
AU - van de Poll-Franse, Lonneke V.
AU - Bijlsma, Rhodé
AU - Kaal, Suzanne E.J.
AU - Kerst, J. Martijn
AU - Tromp, Jacqueline M.
AU - Bos, Monique E.M.M.
AU - Lalisang, Roy I.
AU - Nuver, Janine
AU - Kouwenhoven, Mathilde C.M.
AU - van der Graaf, Winette T.A.
AU - Husson, Olga
N1 - Funding Information:
The authors wish to thank all the patients for their participation in the study. We wish to thank the registration team of the Netherlands Comprehensive Cancer Organisation (IKNL) for the collection of data for the Netherlands Cancer Registry and the PROFILES registry group for the data collection support.
Funding Information:
Carla Vlooswijk Msc is supported by the Dutch Cancer Society (#11788 COMPRAYA study). Dr. Olga Husson and Silvie Janssen MSc are supported by the Netherlands Organization for Scientific Research VIDI grant (198.007). Data collection of the SURVAYA study was partly supported by the investment Grant (#480-08-009) from the Netherlands Organization for Scientific Research. These funding agencies had no further role in study design; in the collection, analysis and interpretation of data; in the writing of the paper; or in the decision to submit the paper for publication.
Publisher Copyright:
© 2023, International Society for Quality of Life Research (ISOQOL).
PY - 2023/9/13
Y1 - 2023/9/13
N2 - The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.
AB - The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.
KW - Adolescents and young adults
KW - Cancer
KW - COVID-19
KW - Health-related quality of life
KW - Social functioning
KW - Survivorship
U2 - 10.1186/s41687-023-00629-0
DO - 10.1186/s41687-023-00629-0
M3 - Article
SN - 2509-8020
VL - 7
JO - Journal of patient-reported outcomes
JF - Journal of patient-reported outcomes
IS - 1
M1 - 93
ER -