Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands

Bas J. H. van Lith; Hans C. J. W. Kerstens; Laura A. C. van den Bemd; Maria W. G. Nijhuis-van der Sanden; Vivian Weerdesteyn; Rob J. E. M. Smeets; Klemens Fheodoroff; Bart P. C. van de Warrenburg; Alexander C. H. Geurts

doi:10.1186/s13023-020-1338-4

Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands

Bas J. H. van Lith^*, Hans C. J. W. Kerstens, Laura A. C. van den Bemd, Maria W. G. Nijhuis-van der Sanden, Vivian Weerdesteyn, Rob J. E. M. Smeets, Klemens Fheodoroff, Bart P. C. van de Warrenburg, Alexander C. H. Geurts

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Original language	English
Article number	64
Number of pages	10
Journal	Orphanet Journal of Rare Diseases
Volume	15
Issue number	1
DOIs	https://doi.org/10.1186/s13023-020-1338-4
Publication status	Published - 4 Mar 2020

Keywords

Hereditary spastic paraplegia
Spastic paraparesis
Survey
Falls
Gait
Rehabilitation
QUALITY-OF-LIFE
MULTIPLE-SCLEROSIS
LIMB SPASTICITY
FALLS
STROKE
ADULTS
FATIGUE
PEOPLE
IDENTIFICATION
FEATURES

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Cite this

van Lith, B. J. H., Kerstens, H. C. J. W., van den Bemd, L. A. C., Nijhuis-van der Sanden, M. W. G., Weerdesteyn, V., Smeets, R. J. E. M., Fheodoroff, K., van de Warrenburg, B. P. C., & Geurts, A. C. H. (2020). Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands. Orphanet Journal of Rare Diseases, 15(1), [64]. https://doi.org/10.1186/s13023-020-1338-4

van Lith, Bas J. H. ; Kerstens, Hans C. J. W. ; van den Bemd, Laura A. C. ; Nijhuis-van der Sanden, Maria W. G. ; Weerdesteyn, Vivian ; Smeets, Rob J. E. M. ; Fheodoroff, Klemens ; van de Warrenburg, Bart P. C. ; Geurts, Alexander C. H. / Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia : a web-based survey in the Netherlands. In: Orphanet Journal of Rare Diseases. 2020 ; Vol. 15, No. 1.

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title = "Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands",

keywords = "Hereditary spastic paraplegia, Spastic paraparesis, Survey, Falls, Gait, Rehabilitation, QUALITY-OF-LIFE, MULTIPLE-SCLEROSIS, LIMB SPASTICITY, FALLS, STROKE, ADULTS, FATIGUE, PEOPLE, IDENTIFICATION, FEATURES",

author = "{van Lith}, {Bas J. H.} and Kerstens, {Hans C. J. W.} and {van den Bemd}, {Laura A. C.} and {Nijhuis-van der Sanden}, {Maria W. G.} and Vivian Weerdesteyn and Smeets, {Rob J. E. M.} and Klemens Fheodoroff and {van de Warrenburg}, {Bart P. C.} and Geurts, {Alexander C. H.}",

year = "2020",

month = mar,

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doi = "10.1186/s13023-020-1338-4",

language = "English",

volume = "15",

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van Lith, BJH, Kerstens, HCJW, van den Bemd, LAC, Nijhuis-van der Sanden, MWG, Weerdesteyn, V, Smeets, RJEM, Fheodoroff, K, van de Warrenburg, BPC & Geurts, ACH 2020, 'Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands', Orphanet Journal of Rare Diseases, vol. 15, no. 1, 64. https://doi.org/10.1186/s13023-020-1338-4

Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia : a web-based survey in the Netherlands. / van Lith, Bas J. H.; Kerstens, Hans C. J. W.; van den Bemd, Laura A. C.; Nijhuis-van der Sanden, Maria W. G.; Weerdesteyn, Vivian; Smeets, Rob J. E. M.; Fheodoroff, Klemens; van de Warrenburg, Bart P. C.; Geurts, Alexander C. H.

In: Orphanet Journal of Rare Diseases, Vol. 15, No. 1, 64, 04.03.2020.

Research output: Contribution to journal › Article › Academic › peer-review

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T1 - Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia

T2 - a web-based survey in the Netherlands

AU - van Lith, Bas J. H.

AU - Kerstens, Hans C. J. W.

AU - van den Bemd, Laura A. C.

AU - Nijhuis-van der Sanden, Maria W. G.

AU - Weerdesteyn, Vivian

AU - Smeets, Rob J. E. M.

AU - Fheodoroff, Klemens

AU - van de Warrenburg, Bart P. C.

AU - Geurts, Alexander C. H.

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KW - Spastic paraparesis

KW - Survey

KW - Falls

KW - Gait

KW - Rehabilitation

KW - QUALITY-OF-LIFE

KW - MULTIPLE-SCLEROSIS

KW - LIMB SPASTICITY

KW - FALLS

KW - STROKE

KW - ADULTS

KW - FATIGUE

KW - PEOPLE

KW - IDENTIFICATION

KW - FEATURES

U2 - 10.1186/s13023-020-1338-4

DO - 10.1186/s13023-020-1338-4

M3 - Article

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JO - Orphanet Journal of Rare Diseases

JF - Orphanet Journal of Rare Diseases

SN - 1750-1172

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van Lith BJH, Kerstens HCJW, van den Bemd LAC, Nijhuis-van der Sanden MWG, Weerdesteyn V, Smeets RJEM et al. Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands. Orphanet Journal of Rare Diseases. 2020 Mar 4;15(1). 64. https://doi.org/10.1186/s13023-020-1338-4