TY - JOUR
T1 - Development of an experienced quality measure for clients, informal and formal caregivers in home care in the Netherlands
T2 - A participatory action research
AU - Haex, Roy
AU - Thoma-Lürken, Theresa
AU - Beurskens, Anna J.H.M.
AU - Zwakhalen, Sandra M.G.
N1 - Funding Information:
Author contributions RH conducted the interviews and thinking aloud sessions, was moderator during focus group interviews, analyzed and interpreted the results and wrote the manuscript. TTL was second coder during analyses. TTL, SZ and SB were involved in the design of the study and critically revised the manuscript for important intellectual content. All authors read and approved the final manuscript and agree accountability for all aspects of the work, ensuring investigating and resolving questions related to the accuracy or integrity of any part of the work. Acknowledgments Authors would like to thank all clients, informal and formal caregivers, as well as the participating organizations for their valuable contributions to this study. Funding Statement This work was supported by the Brightlands Innovation Program LIME (Limburg Measures), a program that facilitates smarter measurements methods and more efficient data collection for better care and health, Province of Limburg, Zuyd University of applied sciences, Maastricht University, the Netherlands. This work is co-supported by the Living Lab in Ageing and Long-term Care. Ethics approval and consent to participate The study protocol was reviewed and approved by the medical ethics committee of Zuyderland and Zuyd University of Applied Sciences (METCZ20180003), who concluded that the study did not fall under the scope of the Medical Research Involving Human Subjects Act (WMO). Participants were informed verbally and in writing about the aim and expected burden of the study and gave their written informed consent to voluntarily participate and to have their conversations recorded. All information gathered was only used for this study and was processed separately from participants’ identifiers to protect the privacy and confidentiality of the participants within this study. Declarations of interest: none This article is associated with the Policy & Measurement lens of The Beryl Institute Experience Framework (https://www.theberylinstitute.org/ExperienceFramework). You can access other resources related to this lens including additional PXJ articles here: http://bit.ly/ PX_PolicyMeasure
Publisher Copyright:
© The Author(s), 2022.
PY - 2022/1/1
Y1 - 2022/1/1
N2 - To optimise home care provision and to identify potential improvements in the care process, it is important to gain insight into the care experiences that influence care quality. The aim was to develop a qualitative experienced quality measure for home care in The Netherlands, facilitating conversations between clients and caregivers in generating possible points of improvement for the primary care process. A participatory action research design to develop the measure following three iterative cycles, using various data sources in evaluating requirements related to the goal, feasibility in care setting, and usability in the care process. The final design comprises an instruction meeting for district nurses and a structured approach to evaluate experienced quality with clients, informal caregivers, and formal caregivers. The measure encompasses cards to visually support communicating on experienced quality themes (e.g., personal needs and expectations), sub-themes (e.g., preferred way of communicating needs), exemplary questions, and a reporting sheet. The first evaluation gave indications of the measure results in formulating concrete points of improvement for the primary care process. This study indicates that the developed experienced quality measure seems promising relating to requirements for its goal, feasibility in the care setting, and usability in the care process. More insight is needed if and how improvements are communicated, documented, and followed-up in practice. In the next step, the measure should be extensively tested and evaluated in a more diverse sample (e.g., clients with dementia) for measuring experienced quality and reflecting on its outcomes.
AB - To optimise home care provision and to identify potential improvements in the care process, it is important to gain insight into the care experiences that influence care quality. The aim was to develop a qualitative experienced quality measure for home care in The Netherlands, facilitating conversations between clients and caregivers in generating possible points of improvement for the primary care process. A participatory action research design to develop the measure following three iterative cycles, using various data sources in evaluating requirements related to the goal, feasibility in care setting, and usability in the care process. The final design comprises an instruction meeting for district nurses and a structured approach to evaluate experienced quality with clients, informal caregivers, and formal caregivers. The measure encompasses cards to visually support communicating on experienced quality themes (e.g., personal needs and expectations), sub-themes (e.g., preferred way of communicating needs), exemplary questions, and a reporting sheet. The first evaluation gave indications of the measure results in formulating concrete points of improvement for the primary care process. This study indicates that the developed experienced quality measure seems promising relating to requirements for its goal, feasibility in the care setting, and usability in the care process. More insight is needed if and how improvements are communicated, documented, and followed-up in practice. In the next step, the measure should be extensively tested and evaluated in a more diverse sample (e.g., clients with dementia) for measuring experienced quality and reflecting on its outcomes.
KW - client perspective
KW - experience measures
KW - Experienced quality
KW - home care
KW - long-term care
KW - measurement
KW - nursing
KW - quality of care
KW - relationship-centred care
U2 - 10.35680/2372-0247.1618
DO - 10.35680/2372-0247.1618
M3 - Article
SN - 2372-0247
VL - 9
SP - 146
EP - 158
JO - Patient Experience Journal
JF - Patient Experience Journal
IS - 1
M1 - 18
ER -