TY - JOUR
T1 - Characteristics for a tool for timely identification of palliative needs in heart failure
T2 - The views of Dutch patients, their families and healthcare professionals
AU - Janssen, Daisy J. A.
AU - Ament, Stephanie M. C.
AU - Boyne, Josiane
AU - Schols, Jos M. G. A.
AU - Brunner-La Rocca, Hans-Peter
AU - Maessen, Jose M. C.
AU - van den Beuken-van Everdingen, Marieke H. J.
N1 - Publisher Copyright:
© The European Society of Cardiology 2020.
PY - 2020/12
Y1 - 2020/12
N2 - BackgroundPalliative care can improve outcomes for patients with advanced chronic heart failure and their families, but timely recognition of palliative care needs remains challenging.AimThe aim of this study was to identify characteristics of a tool to assess palliative care needs in chronic heart failure that are needed for successful implementation, according to patients, their family and healthcare professionals in The Netherlands.MethodsExplorative qualitative study, part of the project 'Identification of patients with HeARt failure with PC needs' (I-HARP), focus groups and individual interviews were held with healthcare professionals, patients with chronic heart failure, and family members. Data were analysed using the Consolidated Framework for Implementation Research.ResultsA total of 13 patients, 10 family members and 26 healthcare professionals participated. Direct-content analysis revealed desired tool characteristics for successful implementation in four constructs: relative advantage, adaptability, complexity, and design quality and packaging. Healthcare professionals indicated that a tool should increase awareness, understanding and knowledge concerning palliative care needs. A tool needs to: be adaptable to different disease stages, facilitate early identification of palliative care needs and ease open conversations about palliative care. The complexity of chronic heart failure should be considered in a personalized approach.ConclusionsThe current study revealed the characteristics of a tool for timely identification of palliative care needs in chronic heart failure needed for successful implementation. The next steps will be to define the content of the tool, followed by development of a preliminary version and iterative testing of this version by the different stakeholders.
AB - BackgroundPalliative care can improve outcomes for patients with advanced chronic heart failure and their families, but timely recognition of palliative care needs remains challenging.AimThe aim of this study was to identify characteristics of a tool to assess palliative care needs in chronic heart failure that are needed for successful implementation, according to patients, their family and healthcare professionals in The Netherlands.MethodsExplorative qualitative study, part of the project 'Identification of patients with HeARt failure with PC needs' (I-HARP), focus groups and individual interviews were held with healthcare professionals, patients with chronic heart failure, and family members. Data were analysed using the Consolidated Framework for Implementation Research.ResultsA total of 13 patients, 10 family members and 26 healthcare professionals participated. Direct-content analysis revealed desired tool characteristics for successful implementation in four constructs: relative advantage, adaptability, complexity, and design quality and packaging. Healthcare professionals indicated that a tool should increase awareness, understanding and knowledge concerning palliative care needs. A tool needs to: be adaptable to different disease stages, facilitate early identification of palliative care needs and ease open conversations about palliative care. The complexity of chronic heart failure should be considered in a personalized approach.ConclusionsThe current study revealed the characteristics of a tool for timely identification of palliative care needs in chronic heart failure needed for successful implementation. The next steps will be to define the content of the tool, followed by development of a preliminary version and iterative testing of this version by the different stakeholders.
KW - Instrument
KW - end-of-life
KW - palliative medicine
KW - assessment
KW - implementation
KW - congestive heart failure
KW - ILLNESS
KW - PEOPLE
U2 - 10.1177/1474515120918962
DO - 10.1177/1474515120918962
M3 - Article
C2 - 32370680
SN - 1474-5151
VL - 19
SP - 711
EP - 720
JO - European Journal of Cardiovascular Nursing
JF - European Journal of Cardiovascular Nursing
IS - 8
M1 - 1474515120918962
ER -