TY - JOUR
T1 - Social Role Participation in Patients With Ankylosing Spondylitis: A Cross-Sectional Comparison With Population Controls
AU - van Genderen, Simon
AU - Plasqui, Guy
AU - Landewe, Robert
AU - Lacaille, Diane
AU - Arends, Suzanne
AU - van Gaalen, Floris
AU - van der Heijde, Desiree
AU - Heuft, Liesbeth
AU - Luime, Jolanda
AU - Spoorenberg, Anneke
AU - Gignac, Monique
AU - Boonen, Annelies
PY - 2016/12
Y1 - 2016/12
N2 - Objective. Participation in social roles for persons with chronic disease is important for their quality of life, but interpretation of the data on participation is difficult in the absence of a benchmark. This study aimed to compare social role participation in patients with ankylosing spondylitis (AS) to population controls using the Social Role Participation Questionnaire (SRPQ). Methods. There were 246 AS patients and 510 population controls who completed the SRPQ, which assesses participation in 11 roles (with scores ranging 1-5) across 4 dimensions (importance, satisfaction with performance, satisfaction with time, and physical difficulty), and additionally ranked their 3 most important roles. The ranking of role importance, the SRPQ dimension scores, and the gap between importance and satisfaction with performance of roles were compared between patients and controls. Results. Patients (62% male; mean +/- SD age 51 +/- 12 years) and controls (70% male; mean +/- SD 42 +/- 15 years) ranked intimate relationships, relationships with children/stepchildren/grandchildren, and employment as the most important roles. Compared to controls, patients gave higher scores on the SRPQ to importance (3.75 versus 3.43), but reported lower satisfaction with performance (3.19 versus 3.58) and greater physical difficulty (3.87 versus 4.67) (P
AB - Objective. Participation in social roles for persons with chronic disease is important for their quality of life, but interpretation of the data on participation is difficult in the absence of a benchmark. This study aimed to compare social role participation in patients with ankylosing spondylitis (AS) to population controls using the Social Role Participation Questionnaire (SRPQ). Methods. There were 246 AS patients and 510 population controls who completed the SRPQ, which assesses participation in 11 roles (with scores ranging 1-5) across 4 dimensions (importance, satisfaction with performance, satisfaction with time, and physical difficulty), and additionally ranked their 3 most important roles. The ranking of role importance, the SRPQ dimension scores, and the gap between importance and satisfaction with performance of roles were compared between patients and controls. Results. Patients (62% male; mean +/- SD age 51 +/- 12 years) and controls (70% male; mean +/- SD 42 +/- 15 years) ranked intimate relationships, relationships with children/stepchildren/grandchildren, and employment as the most important roles. Compared to controls, patients gave higher scores on the SRPQ to importance (3.75 versus 3.43), but reported lower satisfaction with performance (3.19 versus 3.58) and greater physical difficulty (3.87 versus 4.67) (P
U2 - 10.1002/acr.22907
DO - 10.1002/acr.22907
M3 - Article
C2 - 27059161
SN - 2151-464X
VL - 68
SP - 1899
EP - 1905
JO - Arthritis Care & Research
JF - Arthritis Care & Research
IS - 12
ER -