@article{ec67a584619a4abda81fb56e990e8cc9,
title = "Rett syndrome and the role of national parent associations within a European context",
keywords = "Rett syndrome, parent associations, centres of expertise, European Union, European policy, rare diseases, rare disease registries",
author = "Gillian Townend and Eric Smeets and {van Waardenburg}, Dick and {van der Stel}, Rob and {van den Berg}, Marielle and {van Kranen}, Henk and Leopold Curfs",
year = "2015",
language = "English",
volume = "2",
pages = "17--26",
journal = "Rare diseases and orphan drugs",
issn = "2284-2543",
number = "2",
}