Prenatal (non)treatment decisions in extreme prematurity: evaluation of Decisional Conflict and Regret among parents

R. Geurtzen; J. Draaisma; R. Hermens; H. Scheepers; M. Woiski; A. van Heijst; M. Hogeveen

doi:10.1038/jp.2017.90

Prenatal (non)treatment decisions in extreme prematurity: evaluation of Decisional Conflict and Regret among parents

R. Geurtzen^*, J. Draaisma, R. Hermens, H. Scheepers, M. Woiski, A. van Heijst, M. Hogeveen

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

OBJECTIVE: To evaluate Decisional Conflict and Regret among parents regarding the decision on initiating comfort or active care in extreme prematurity and to relate these to decision-making characteristics.

STUDY DESIGN: A nationwide, multicenter, cross-sectional study using an online survey in the Netherlands. Data were collected from March 2015 to March 2016 among all parents with infants born at 24(+0/7)-24(+6/7) weeks gestational age in 2010-2013. The survey contained a Decisional Conflict and Decision Regret Scale (potential scores range from 0 to 100) and decision -making characteristics.

RESULTS: Sixty-one surveys were returned (response rate 27%). The median Decisional Conflict score was 28. From the subscores within Decisional Conflict, 'values clarity' revealed the highest median score of 42 revealing that parents felt unclear about personal values for benefits and risks of the decision on either comfort care or active care. The median Decision Regret score was 0. Regret scores were influenced by the actual decision made and by outcome: Decision Regret was lower in the active care group and in the survivor group.

CONCLUSION: We found little Decisional Conflict and no Decision Regret among parents regarding decision -making at 24 weeks gestation.

Original language	English
Pages (from-to)	999-1002
Number of pages	4
Journal	Journal of Perinatology
Volume	37
Issue number	9
DOIs	https://doi.org/10.1038/jp.2017.90
Publication status	Published - Sept 2017

Keywords

INTENSIVE-CARE
DELIVERY ROOM
HIGH-RISK
VIABILITY
INFANTS
RESUSCITATION
THRESHOLD
AID
PREFERENCES
VALIDATION

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Cite this

@article{bd4f6012588d47d88f826e0c44197f7a,

title = "Prenatal (non)treatment decisions in extreme prematurity: evaluation of Decisional Conflict and Regret among parents",

abstract = "OBJECTIVE: To evaluate Decisional Conflict and Regret among parents regarding the decision on initiating comfort or active care in extreme prematurity and to relate these to decision-making characteristics.STUDY DESIGN: A nationwide, multicenter, cross-sectional study using an online survey in the Netherlands. Data were collected from March 2015 to March 2016 among all parents with infants born at 24(+0/7)-24(+6/7) weeks gestational age in 2010-2013. The survey contained a Decisional Conflict and Decision Regret Scale (potential scores range from 0 to 100) and decision -making characteristics.RESULTS: Sixty-one surveys were returned (response rate 27%). The median Decisional Conflict score was 28. From the subscores within Decisional Conflict, 'values clarity' revealed the highest median score of 42 revealing that parents felt unclear about personal values for benefits and risks of the decision on either comfort care or active care. The median Decision Regret score was 0. Regret scores were influenced by the actual decision made and by outcome: Decision Regret was lower in the active care group and in the survivor group.CONCLUSION: We found little Decisional Conflict and no Decision Regret among parents regarding decision -making at 24 weeks gestation.",

keywords = "INTENSIVE-CARE, DELIVERY ROOM, HIGH-RISK, VIABILITY, INFANTS, RESUSCITATION, THRESHOLD, AID, PREFERENCES, VALIDATION",

author = "R. Geurtzen and J. Draaisma and R. Hermens and H. Scheepers and M. Woiski and {van Heijst}, A. and M. Hogeveen",

year = "2017",

month = sep,

doi = "10.1038/jp.2017.90",

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AU - Geurtzen, R.

AU - Draaisma, J.

AU - Hermens, R.

AU - Scheepers, H.

AU - Woiski, M.

AU - van Heijst, A.

AU - Hogeveen, M.

PY - 2017/9

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N2 - OBJECTIVE: To evaluate Decisional Conflict and Regret among parents regarding the decision on initiating comfort or active care in extreme prematurity and to relate these to decision-making characteristics.STUDY DESIGN: A nationwide, multicenter, cross-sectional study using an online survey in the Netherlands. Data were collected from March 2015 to March 2016 among all parents with infants born at 24(+0/7)-24(+6/7) weeks gestational age in 2010-2013. The survey contained a Decisional Conflict and Decision Regret Scale (potential scores range from 0 to 100) and decision -making characteristics.RESULTS: Sixty-one surveys were returned (response rate 27%). The median Decisional Conflict score was 28. From the subscores within Decisional Conflict, 'values clarity' revealed the highest median score of 42 revealing that parents felt unclear about personal values for benefits and risks of the decision on either comfort care or active care. The median Decision Regret score was 0. Regret scores were influenced by the actual decision made and by outcome: Decision Regret was lower in the active care group and in the survivor group.CONCLUSION: We found little Decisional Conflict and no Decision Regret among parents regarding decision -making at 24 weeks gestation.

AB - OBJECTIVE: To evaluate Decisional Conflict and Regret among parents regarding the decision on initiating comfort or active care in extreme prematurity and to relate these to decision-making characteristics.STUDY DESIGN: A nationwide, multicenter, cross-sectional study using an online survey in the Netherlands. Data were collected from March 2015 to March 2016 among all parents with infants born at 24(+0/7)-24(+6/7) weeks gestational age in 2010-2013. The survey contained a Decisional Conflict and Decision Regret Scale (potential scores range from 0 to 100) and decision -making characteristics.RESULTS: Sixty-one surveys were returned (response rate 27%). The median Decisional Conflict score was 28. From the subscores within Decisional Conflict, 'values clarity' revealed the highest median score of 42 revealing that parents felt unclear about personal values for benefits and risks of the decision on either comfort care or active care. The median Decision Regret score was 0. Regret scores were influenced by the actual decision made and by outcome: Decision Regret was lower in the active care group and in the survivor group.CONCLUSION: We found little Decisional Conflict and no Decision Regret among parents regarding decision -making at 24 weeks gestation.

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KW - AID

KW - PREFERENCES

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