TY - JOUR
T1 - Patient and public involvement in clinical guidelines: international experiences and future perspectives
AU - Boivin, Antoine
AU - Currie, Kay
AU - Fervers, Beatrice
AU - Gracia, Javier
AU - James, Marian
AU - Marshall, Catherine
AU - Sakala, Carol
AU - Sanger, Sylvia
AU - Strid, Judi
AU - Thomas, Victoria
AU - van der Weijden, Trudy
AU - Grol, Richard P.
AU - Burgers, Jako S.
PY - 2010/10
Y1 - 2010/10
N2 - Background Clinical practice guidelines (CPG) are important tools for improving patient care. Patient and public involvement is recognised as an essential component of CPG development and implementation, The Guideline International Network Patient and Public Involvement Working Group (G-I-N PUBLIC) aims to support the development, implementation and evaluation of guideline-oriented patient and public involvement programmes (PPIPs). Objective To develop an international practice and research agenda on patient and public involvement in CPG. Method 56 CPG developers, researchers, and patient/public representatives from 14 different countries, were consulted in an international workshop. Recommendations were validated with G-I-N PUBLIC steering committee members. Results Many CPG organisations have set up PPIPs that use a range of participation, consultation and communication methods. Current PPIPs aim to improve the quality and responsiveness of CPGs to public expectations and needs, or to foster individual healthcare decisions. Some organisations use structured involvement methods, including providing training for patient and public representatives. A number of financial, organisational and sociopolitical barriers limit patient and public involvement. The paucity of process and impact evaluations limits our current understanding of the conditions under which patient and public involvement is most likely to be effective. Conclusion Greater international collaboration and research are needed to strengthen existing knowledge, development and evaluation of patient and public involvement in CPG.
AB - Background Clinical practice guidelines (CPG) are important tools for improving patient care. Patient and public involvement is recognised as an essential component of CPG development and implementation, The Guideline International Network Patient and Public Involvement Working Group (G-I-N PUBLIC) aims to support the development, implementation and evaluation of guideline-oriented patient and public involvement programmes (PPIPs). Objective To develop an international practice and research agenda on patient and public involvement in CPG. Method 56 CPG developers, researchers, and patient/public representatives from 14 different countries, were consulted in an international workshop. Recommendations were validated with G-I-N PUBLIC steering committee members. Results Many CPG organisations have set up PPIPs that use a range of participation, consultation and communication methods. Current PPIPs aim to improve the quality and responsiveness of CPGs to public expectations and needs, or to foster individual healthcare decisions. Some organisations use structured involvement methods, including providing training for patient and public representatives. A number of financial, organisational and sociopolitical barriers limit patient and public involvement. The paucity of process and impact evaluations limits our current understanding of the conditions under which patient and public involvement is most likely to be effective. Conclusion Greater international collaboration and research are needed to strengthen existing knowledge, development and evaluation of patient and public involvement in CPG.
U2 - 10.1136/qshc.2009.034835
DO - 10.1136/qshc.2009.034835
M3 - Article
C2 - 20427302
SN - 1475-3898
VL - 19
JO - Quality & Safety in Health Care
JF - Quality & Safety in Health Care
IS - 5
M1 - e22
ER -