Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages

U. Kiltz; D van der Heijde; Annelies Boonen; W Bautista-Molano; R. Burgos-Vargas; P Chiowchanwisawakit; T Duruoz; B El-Zorkany; I Essers; I Gaydukova; P Géher; L. Gossec; S Grazio; J. Gu; Michael A. Khan; T J Kim; Walter P. Maksymowych; H. Marzo-Ortega; V Navarro-Compán; I. Olivieri; D Patrikos; F M Pimentel-Santos; Melanie Schirmer; F. van den Bosch; Ulrich Weber; J. Zochling; J Braun

doi:10.1136/rmdopen-2016-000311

Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages

U. Kiltz^*, D van der Heijde, Annelies Boonen, W Bautista-Molano, R. Burgos-Vargas, P Chiowchanwisawakit, T Duruoz, B El-Zorkany, I Essers, I Gaydukova, P Géher, L. Gossec, S Grazio, J. Gu, Michael A. Khan, T J Kim, Walter P. Maksymowych, H. Marzo-Ortega, V Navarro-Compán, I. OlivieriD Patrikos, F M Pimentel-Santos, Melanie Schirmer, F. van den Bosch, Ulrich Weber, J. Zochling, J Braun

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

INTRODUCTION: The Assessments of SpondyloArthritis international society Health Index (ASAS HI) measures functioning and health in patients with spondyloarthritis (SpA) across 17 aspects of health and 9 environmental factors (EF). The objective was to translate and adapt the original English version of the ASAS HI, including the EF Item Set, cross-culturally into 15 languages.

METHODS: Translation and cross-cultural adaptation has been carried out following the forward-backward procedure. In the cognitive debriefing, 10 patients/country across a broad spectrum of sociodemographic background, were included.

RESULTS: The ASAS HI and the EF Item Set were translated into Arabic, Chinese, Croatian, Dutch, French, German, Greek, Hungarian, Italian, Korean, Portuguese, Russian, Spanish, Thai and Turkish. Some difficulties were experienced with translation of the contextual factors indicating that these concepts may be more culturally-dependent. A total of 215 patients with axial SpA across 23 countries (62.3% men, mean (SD) age 42.4 (13.9) years) participated in the field test. Cognitive debriefing showed that items of the ASAS HI and EF Item Set are clear, relevant and comprehensive. All versions were accepted with minor modifications with respect to item wording and response option. The wording of three items had to be adapted to improve clarity. As a result of cognitive debriefing, a new response option 'not applicable' was added to two items of the ASAS HI to improve appropriateness.

DISCUSSION: This study showed that the items of the ASAS HI including the EFs were readily adaptable throughout all countries, indicating that the concepts covered were comprehensive, clear and meaningful in different cultures.

Original language	English
Article number	000311
Pages (from-to)	e000311
Number of pages	5
Journal	RMD Open
Volume	2
Issue number	2
DOIs	https://doi.org/10.1136/rmdopen-2016-000311
Publication status	Published - Dec 2016

Keywords

Journal Article
INTERNATIONAL CLASSIFICATION
DISABILITY
ANKYLOSING-SPONDYLITIS
ICF

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10.1136/rmdopen-2016-000311Licence: CC BY-NC

Cite this

Kiltz, U., van der Heijde, D., Boonen, A., Bautista-Molano, W., Burgos-Vargas, R., Chiowchanwisawakit, P., Duruoz, T., El-Zorkany, B., Essers, I., Gaydukova, I., Géher, P., Gossec, L., Grazio, S., Gu, J., Khan, M. A., Kim, T. J., Maksymowych, W. P., Marzo-Ortega, H., Navarro-Compán, V., ... Braun, J. (2016). Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages. RMD Open, 2(2), e000311. Article 000311. https://doi.org/10.1136/rmdopen-2016-000311

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title = "Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages",

abstract = "INTRODUCTION: The Assessments of SpondyloArthritis international society Health Index (ASAS HI) measures functioning and health in patients with spondyloarthritis (SpA) across 17 aspects of health and 9 environmental factors (EF). The objective was to translate and adapt the original English version of the ASAS HI, including the EF Item Set, cross-culturally into 15 languages.METHODS: Translation and cross-cultural adaptation has been carried out following the forward-backward procedure. In the cognitive debriefing, 10 patients/country across a broad spectrum of sociodemographic background, were included.RESULTS: The ASAS HI and the EF Item Set were translated into Arabic, Chinese, Croatian, Dutch, French, German, Greek, Hungarian, Italian, Korean, Portuguese, Russian, Spanish, Thai and Turkish. Some difficulties were experienced with translation of the contextual factors indicating that these concepts may be more culturally-dependent. A total of 215 patients with axial SpA across 23 countries (62.3% men, mean (SD) age 42.4 (13.9) years) participated in the field test. Cognitive debriefing showed that items of the ASAS HI and EF Item Set are clear, relevant and comprehensive. All versions were accepted with minor modifications with respect to item wording and response option. The wording of three items had to be adapted to improve clarity. As a result of cognitive debriefing, a new response option 'not applicable' was added to two items of the ASAS HI to improve appropriateness.DISCUSSION: This study showed that the items of the ASAS HI including the EFs were readily adaptable throughout all countries, indicating that the concepts covered were comprehensive, clear and meaningful in different cultures.",

keywords = "Journal Article, INTERNATIONAL CLASSIFICATION, DISABILITY, ANKYLOSING-SPONDYLITIS, ICF",

author = "U. Kiltz and {van der Heijde}, D and Annelies Boonen and W Bautista-Molano and R. Burgos-Vargas and P Chiowchanwisawakit and T Duruoz and B El-Zorkany and I Essers and I Gaydukova and P G{\'e}her and L. Gossec and S Grazio and J. Gu and Khan, {Michael A.} and Kim, {T J} and Maksymowych, {Walter P.} and H. Marzo-Ortega and V Navarro-Comp{\'a}n and I. Olivieri and D Patrikos and Pimentel-Santos, {F M} and Melanie Schirmer and {van den Bosch}, F. and Ulrich Weber and J. Zochling and J Braun",

year = "2016",

month = dec,

doi = "10.1136/rmdopen-2016-000311",

language = "English",

volume = "2",

pages = "e000311",

journal = "RMD Open",

issn = "2056-5933",

publisher = "BMJ Publishing Group",

number = "2",

}

Kiltz, U, van der Heijde, D, Boonen, A, Bautista-Molano, W, Burgos-Vargas, R, Chiowchanwisawakit, P, Duruoz, T, El-Zorkany, B, Essers, I, Gaydukova, I, Géher, P, Gossec, L, Grazio, S, Gu, J, Khan, MA, Kim, TJ, Maksymowych, WP, Marzo-Ortega, H, Navarro-Compán, V, Olivieri, I, Patrikos, D, Pimentel-Santos, FM, Schirmer, M, van den Bosch, F, Weber, U, Zochling, J & Braun, J 2016, 'Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages', RMD Open, vol. 2, no. 2, 000311, pp. e000311. https://doi.org/10.1136/rmdopen-2016-000311

Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages. / Kiltz, U.; van der Heijde, D; Boonen, Annelies et al.
In: RMD Open, Vol. 2, No. 2, 000311, 12.2016, p. e000311.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages

AU - Kiltz, U.

AU - van der Heijde, D

AU - Boonen, Annelies

AU - Bautista-Molano, W

AU - Burgos-Vargas, R.

AU - Chiowchanwisawakit, P

AU - Duruoz, T

AU - El-Zorkany, B

AU - Essers, I

AU - Gaydukova, I

AU - Géher, P

AU - Gossec, L.

AU - Grazio, S

AU - Gu, J.

AU - Khan, Michael A.

AU - Kim, T J

AU - Maksymowych, Walter P.

AU - Marzo-Ortega, H.

AU - Navarro-Compán, V

AU - Olivieri, I.

AU - Patrikos, D

AU - Pimentel-Santos, F M

AU - Schirmer, Melanie

AU - van den Bosch, F.

AU - Weber, Ulrich

AU - Zochling, J.

AU - Braun, J

PY - 2016/12

Y1 - 2016/12

N2 - INTRODUCTION: The Assessments of SpondyloArthritis international society Health Index (ASAS HI) measures functioning and health in patients with spondyloarthritis (SpA) across 17 aspects of health and 9 environmental factors (EF). The objective was to translate and adapt the original English version of the ASAS HI, including the EF Item Set, cross-culturally into 15 languages.METHODS: Translation and cross-cultural adaptation has been carried out following the forward-backward procedure. In the cognitive debriefing, 10 patients/country across a broad spectrum of sociodemographic background, were included.RESULTS: The ASAS HI and the EF Item Set were translated into Arabic, Chinese, Croatian, Dutch, French, German, Greek, Hungarian, Italian, Korean, Portuguese, Russian, Spanish, Thai and Turkish. Some difficulties were experienced with translation of the contextual factors indicating that these concepts may be more culturally-dependent. A total of 215 patients with axial SpA across 23 countries (62.3% men, mean (SD) age 42.4 (13.9) years) participated in the field test. Cognitive debriefing showed that items of the ASAS HI and EF Item Set are clear, relevant and comprehensive. All versions were accepted with minor modifications with respect to item wording and response option. The wording of three items had to be adapted to improve clarity. As a result of cognitive debriefing, a new response option 'not applicable' was added to two items of the ASAS HI to improve appropriateness.DISCUSSION: This study showed that the items of the ASAS HI including the EFs were readily adaptable throughout all countries, indicating that the concepts covered were comprehensive, clear and meaningful in different cultures.

AB - INTRODUCTION: The Assessments of SpondyloArthritis international society Health Index (ASAS HI) measures functioning and health in patients with spondyloarthritis (SpA) across 17 aspects of health and 9 environmental factors (EF). The objective was to translate and adapt the original English version of the ASAS HI, including the EF Item Set, cross-culturally into 15 languages.METHODS: Translation and cross-cultural adaptation has been carried out following the forward-backward procedure. In the cognitive debriefing, 10 patients/country across a broad spectrum of sociodemographic background, were included.RESULTS: The ASAS HI and the EF Item Set were translated into Arabic, Chinese, Croatian, Dutch, French, German, Greek, Hungarian, Italian, Korean, Portuguese, Russian, Spanish, Thai and Turkish. Some difficulties were experienced with translation of the contextual factors indicating that these concepts may be more culturally-dependent. A total of 215 patients with axial SpA across 23 countries (62.3% men, mean (SD) age 42.4 (13.9) years) participated in the field test. Cognitive debriefing showed that items of the ASAS HI and EF Item Set are clear, relevant and comprehensive. All versions were accepted with minor modifications with respect to item wording and response option. The wording of three items had to be adapted to improve clarity. As a result of cognitive debriefing, a new response option 'not applicable' was added to two items of the ASAS HI to improve appropriateness.DISCUSSION: This study showed that the items of the ASAS HI including the EFs were readily adaptable throughout all countries, indicating that the concepts covered were comprehensive, clear and meaningful in different cultures.

KW - Journal Article

KW - INTERNATIONAL CLASSIFICATION

KW - DISABILITY

KW - ANKYLOSING-SPONDYLITIS

KW - ICF

U2 - 10.1136/rmdopen-2016-000311

DO - 10.1136/rmdopen-2016-000311

M3 - Article

C2 - 27752358

SN - 2056-5933

VL - 2

SP - e000311

JO - RMD Open

JF - RMD Open

IS - 2

M1 - 000311

ER -

Kiltz U, van der Heijde D, Boonen A, Bautista-Molano W, Burgos-Vargas R, Chiowchanwisawakit P et al. Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set translation and cross-cultural adaptation into 15 languages. RMD Open. 2016 Dec;2(2):e000311. 000311. doi: 10.1136/rmdopen-2016-000311