@article{abf9e1f224a24830992eb9a0d1521aaa,
title = "'You're only there on the phone'? A qualitative exploration of community, affect and agential capacity in HIV self-testing using a smartphone app",
abstract = "Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self-monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self-testing using a smartphone app strategy in Cape Town, South Africa and Montreal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app-based self-test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app-based self-testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care.",
keywords = "affect, care, digital health, hiv, mhealth",
author = "R. Janssen and N. Engel and N.P. Pai and A. Esmail and K. Dheda and R. Thomas and A. Krumeich",
note = "Funding Information: South Africa project was funded by a transition to scale grant from Grand Challenges Canada, #0732-05 (awarded to Dr. Pant Pai), the Department of Science & Technology, South Africa (awarded to Dr. Dheda and Dr. Pant Pai), the South African Medical Research Council SHIP (awarded to Dr. Dheda and Dr. Pant Pai), the RI-MUHC and the MUHC Foundation. The test kits were provided by OraSure Technologies (PA, USA). The Montr?al project was funded by the Canadian Institutes of Health Research (CIHR) operating grant HHP 137872. Dr. Pant Pai also acknowledges the support of The fonds de recherche du Qu?bec ? Sant? Research-Scholar Awards (Junior 2 and Senior). We extend our sincere thanks to the participants and staff at each of the study sites for their contributions, care and time while doing this research. Funding Information: South Africa project was funded by a transition to scale grant from Grand Challenges Canada, #0732‐05 (awarded to Dr. Pant Pai), the Department of Science & Technology, South Africa (awarded to Dr. Dheda and Dr. Pant Pai), the South African Medical Research Council SHIP (awarded to Dr. Dheda and Dr. Pant Pai), the RI‐MUHC and the MUHC Foundation. The test kits were provided by OraSure Technologies (PA, USA). The Montr{\'e}al project was funded by the Canadian Institutes of Health Research (CIHR) operating grant HHP 137872. Dr. Pant Pai also acknowledges the support of The fonds de recherche du Qu{\'e}bec – Sant{\'e} Research‐Scholar Awards (Junior 2 and Senior). Publisher Copyright: {\textcopyright} 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).",
year = "2021",
month = mar,
doi = "10.1111/1467-9566.13242",
language = "English",
volume = "43",
pages = "591--606",
journal = "Sociology of Health & Illness",
issn = "0141-9889",
publisher = "Wiley-Blackwell",
number = "3",
}