'We Should View Him as an Individual': The Role of the Child's Future Autonomy in Shared Decision-Making About Unsolicited Findings in Pediatric Exome Sequencing

W. Dondorp*, I. Bolt, A. Tibben, G. De Wert, M. Van Summeren

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

1 Citation (Web of Science)
Original languageEnglish
Pages (from-to)249-261
Number of pages13
JournalHealth Care Analysis
Volume29
Issue number3
Early online date2 Jan 2021
DOIs
Publication statusPublished - Sep 2021

Keywords

  • american-college
  • clinical exome
  • clinical sequencing
  • ethical challenges
  • ethics
  • future autonomy
  • incidental findings
  • medical genetics
  • pediatrics
  • policy
  • psychosocial implications
  • recommendations
  • return
  • shared decision making
  • statement
  • unsollicited findings
  • STATEMENT
  • Pediatrics
  • AMERICAN-COLLEGE
  • Unsollicited findings
  • MEDICAL GENETICS
  • Ethics
  • RETURN
  • Clinical sequencing
  • RECOMMENDATIONS
  • Future autonomy
  • PSYCHOSOCIAL IMPLICATIONS
  • INCIDENTAL FINDINGS
  • POLICY
  • Shared decision making
  • ETHICAL CHALLENGES
  • CLINICAL EXOME

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