Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands

E.C. van Balen, L. Haverman, S. Hassan, E.M. Taal, C. Smit, M.H. Driessens, E.A.M. Beckers, M. Coppens, J. Eikenboom, H.L. Hooimeijer, F.W.G. Leebeek, L.F.D. van Vulpen, S.E.M. Schols, C.B. Terwee, F.R. Rosendaal, J.G. van der Bom, S.C. Gouw*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Original languageEnglish
Pages (from-to)2687-2701
Number of pages15
JournalJournal of Thrombosis and Haemostasis
Volume19
Issue number11
Early online date3 Aug 2021
DOIs
Publication statusPublished - Nov 2021

Keywords

  • hemophilia A
  • hemophilia B
  • patient reported outcome measures
  • surveys and questionnaires
  • validation study
  • QUALITY-OF-LIFE
  • MINIMALLY IMPORTANT DIFFERENCES
  • REPORTED OUTCOME INSTRUMENTS
  • SYSTEM SHORT FORMS
  • FUNCTIONAL IMPAIRMENT
  • US ADULTS
  • PAIN
  • RESPONSIVENESS
  • QUESTIONNAIRE
  • INDIVIDUALS

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