@article{85a135eaef3748399a2d69b5ed08b66a,
title = "Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health",
abstract = "Objective. Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).Methods. Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.Results. Categories identified as at least {"}moderately relevant{"} by >= 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.Conclusion. Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.",
keywords = "OMERACT, VASCULITIS, OUTCOME ASSESSMENT, CLINICAL-TRIALS",
author = "Nataliya Milman and Eilish McConville and Robson, {Joanna C.} and Annelies Boonen and Peter Tugwell and Wells, {George A.} and Dipayan Chaudhuri and Jill Dawson and Gunnar Tomasson and Susan Ashdown and Don Gebhart and Georgia Lanier and Jacqueline Peck and McAlear, {Carol A.} and Kellom, {Katherine S.} and Cronholm, {Peter F.} and Merkel, {Peter A.}",
note = "Funding Information: The Vasculitis Clinical Research Consortium (VCRC) Outcome Measures in Rheumatology Vasculitis Working Group was supported by the Vasculitis Clinical Research Consortium, which received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (grants U54-AR-057319 and U01-AR-51874 04), the National Center for Research Resources (grant U54-RR-019497), the National Center for Advancing Translational Science, and the Office of Rare Diseases Research, each part of the US National Institutes of Health (NIH). The VCRC is a member of the NIH Rare Diseases Clinical Research Network. The VCRC also received a Pilot award from the Patient-Centered Outcomes Research Institute. Dr. Milman{\textquoteright}s work was supported by a postgraduate Rheumatology Fellowship award given jointly by UCB Funding Information: Pharma, the Canadian Rheumatology Association, and The Arthritis Society, and a Fellowship from the Ottawa Hospital Department of Medicine. This work was further supported by a Vasculitis Foundation Research Grant. Funding Information: The Vasculitis Clinical Research Consortium (VCRC) Outcome Measures in Rheumatology Vasculitis Working Group was supported by the Vasculitis Clinical Research Consortium, which received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (grants U54-AR-057319 and U01-AR-51874 04), the National Center for Research Resources (grant U54-RR-019497), the National Center for Advancing Translational Science, and the Office of Rare Diseases Research, each part of the US National Institutes of Health (NIH). The VCRC is a member of the NIH Rare Diseases Clinical Research Network. The VCRC also received a Pilot award from the Patient-Centered Outcomes Research Institute. Dr. Milman{\textquoteright}s work was supported by a postgraduate Rheumatology Fellowship award given jointly by UCB Pharma, the Canadian Rheumatology Association, and The Arthritis Society, and a Fellowship from the Ottawa Hospital Department of Medicine. This work was further supported by a Vasculitis Foundation Research Grant. The authors appreciate the assistance and advice of Susan Humphrey-Murto, Joyce Kullman, John Mills, Susan Mills, and C. Douglas Smith. Publisher Copyright: The Journal of Rheumatology Copyright {\textcopyright} 2019. All rights reserved.; International Consensus Conference on Outcome Measures in Rheumatology (OMERACT) ; Conference date: 01-05-2018",
year = "2019",
month = oct,
day = "1",
doi = "10.3899/jrheum.181073",
language = "English",
volume = "46",
pages = "1415--1420",
journal = "Journal of Rheumatology",
issn = "0315-162X",
publisher = "Journal of Rheumatology",
number = "10",
}