Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health

Nataliya Milman*, Eilish McConville, Joanna C. Robson, Annelies Boonen, Peter Tugwell, George A. Wells, Dipayan Chaudhuri, Jill Dawson, Gunnar Tomasson, Susan Ashdown, Don Gebhart, Georgia Lanier, Jacqueline Peck, Carol A. McAlear, Katherine S. Kellom, Peter F. Cronholm, Peter A. Merkel

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review


Objective. Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).

Methods. Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.

Results. Categories identified as at least "moderately relevant" by >= 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.

Conclusion. Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.

Original languageEnglish
Pages (from-to)1415-1420
Number of pages6
JournalJournal of Rheumatology
Issue number10
Publication statusPublished - 1 Oct 2019
EventInternational Consensus Conference on Outcome Measures in Rheumatology (OMERACT) - Terrigal, Australia
Duration: 1 May 2018 → …



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