Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health

Nataliya Milman; Eilish McConville; Joanna C. Robson; Annelies Boonen; Peter Tugwell; George A. Wells; Dipayan Chaudhuri; Jill Dawson; Gunnar Tomasson; Susan Ashdown; Don Gebhart; Georgia Lanier; Jacqueline Peck; Carol A. McAlear; Katherine S. Kellom; Peter F. Cronholm; Peter A. Merkel

doi:10.3899/jrheum.181073

Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health

Nataliya Milman^*, Eilish McConville, Joanna C. Robson, Annelies Boonen, Peter Tugwell, George A. Wells, Dipayan Chaudhuri, Jill Dawson, Gunnar Tomasson, Susan Ashdown, Don Gebhart, Georgia Lanier, Jacqueline Peck, Carol A. McAlear, Katherine S. Kellom, Peter F. Cronholm, Peter A. Merkel

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

3 Citations (Web of Science)

Abstract

Objective. Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).

Methods. Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.

Results. Categories identified as at least "moderately relevant" by >= 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.

Conclusion. Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.

Original language	English
Pages (from-to)	1415-1420
Number of pages	6
Journal	Journal of Rheumatology
Volume	46
Issue number	10
DOIs	https://doi.org/10.3899/jrheum.181073
Publication status	Published - 1 Oct 2019
Event	International Consensus Conference on Outcome Measures in Rheumatology (OMERACT) - Terrigal, Australia Duration: 1 May 2018 → …

Keywords

OMERACT
VASCULITIS
OUTCOME ASSESSMENT
CLINICAL-TRIALS

Access to Document

10.3899/jrheum.181073

Cite this

Milman, N., McConville, E., Robson, J. C., Boonen, A., Tugwell, P., Wells, G. A., Chaudhuri, D., Dawson, J., Tomasson, G., Ashdown, S., Gebhart, D., Lanier, G., Peck, J., McAlear, C. A., Kellom, K. S., Cronholm, P. F., & Merkel, P. A. (2019). Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health. Journal of Rheumatology, 46(10), 1415-1420. https://doi.org/10.3899/jrheum.181073

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title = "Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health",

abstract = "Objective. Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).Methods. Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.Results. Categories identified as at least {"}moderately relevant{"} by >= 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.Conclusion. Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.",

keywords = "OMERACT, VASCULITIS, OUTCOME ASSESSMENT, CLINICAL-TRIALS",

author = "Nataliya Milman and Eilish McConville and Robson, {Joanna C.} and Annelies Boonen and Peter Tugwell and Wells, {George A.} and Dipayan Chaudhuri and Jill Dawson and Gunnar Tomasson and Susan Ashdown and Don Gebhart and Georgia Lanier and Jacqueline Peck and McAlear, {Carol A.} and Kellom, {Katherine S.} and Cronholm, {Peter F.} and Merkel, {Peter A.}",

year = "2019",

month = oct,

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doi = "10.3899/jrheum.181073",

language = "English",

volume = "46",

pages = "1415--1420",

journal = "Journal of Rheumatology",

issn = "0315-162X",

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number = "10",

note = "International Consensus Conference on Outcome Measures in Rheumatology (OMERACT) ; Conference date: 01-05-2018",

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Milman, N, McConville, E, Robson, JC, Boonen, A, Tugwell, P, Wells, GA, Chaudhuri, D, Dawson, J, Tomasson, G, Ashdown, S, Gebhart, D, Lanier, G, Peck, J, McAlear, CA, Kellom, KS, Cronholm, PF & Merkel, PA 2019, 'Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health', Journal of Rheumatology, vol. 46, no. 10, pp. 1415-1420. https://doi.org/10.3899/jrheum.181073

Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis : Patient Perspective Using the International Classification of Function, Disability, and Health. / Milman, Nataliya; McConville, Eilish; Robson, Joanna C. et al.

In: Journal of Rheumatology, Vol. 46, No. 10, 01.10.2019, p. 1415-1420.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis

T2 - International Consensus Conference on Outcome Measures in Rheumatology (OMERACT)

AU - Milman, Nataliya

AU - McConville, Eilish

AU - Robson, Joanna C.

AU - Boonen, Annelies

AU - Tugwell, Peter

AU - Wells, George A.

AU - Chaudhuri, Dipayan

AU - Dawson, Jill

AU - Tomasson, Gunnar

AU - Ashdown, Susan

AU - Gebhart, Don

AU - Lanier, Georgia

AU - Peck, Jacqueline

AU - McAlear, Carol A.

AU - Kellom, Katherine S.

AU - Cronholm, Peter F.

AU - Merkel, Peter A.

PY - 2019/10/1

Y1 - 2019/10/1

N2 - Objective. Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).Methods. Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.Results. Categories identified as at least "moderately relevant" by >= 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.Conclusion. Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.

AB - Objective. Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).Methods. Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.Results. Categories identified as at least "moderately relevant" by >= 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.Conclusion. Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.

KW - OMERACT

KW - VASCULITIS

KW - OUTCOME ASSESSMENT

KW - CLINICAL-TRIALS

U2 - 10.3899/jrheum.181073

DO - 10.3899/jrheum.181073

M3 - Article

VL - 46

SP - 1415

EP - 1420

JO - Journal of Rheumatology

JF - Journal of Rheumatology

SN - 0315-162X

IS - 10

Y2 - 1 May 2018

ER -