@article{21dacd826aaf40fea3a0876f913adcae,
title = "Unmet support needs relating to hypoglycaemia among adults with type 1 diabetes: Results of a multi-country web-based qualitative study",
abstract = "Objective Hypoglycaemic episodes and fear of hypoglycaemia can be burdensome for adults with type 1 diabetes. This study explored support needs relating to hypoglycaemia among adults with type 1 diabetes living in Denmark, Germany, the Netherlands and the United Kingdom. Research design and methods Respondents participated in a web-based qualitative study involving four open-ended questions that asked what they wished other people understood about hypoglycaemia and what other people could do differently to support them with hypoglycaemia. Responses were analyzed using reflexive thematic analysis. Results Participants were 219 adults with type 1 diabetes (mean +/- SD age 39 +/- 13 years; mean +/- SD diabetes duration 20 +/- 14 years). They described unmet needs relating to: (1) Clinical support, involving access to new diabetes technologies, training on hypoglycaemia prevention, personalised care and psychological support; (2) Practical support, involving family and friends better supporting them with hypoglycaemia management and prevention; (3) Education for other people, involving others becoming more informed about hypoglycaemia; and (4) An appreciation of the burden, involving others recognizing the experience and impact of episodes, and the burden of living with the risk of hypoglycaemia. Conclusions Adults with type 1 diabetes report several unmet support needs relating to hypoglycaemia. Service delivery should be person-centred and prioritise the individual's support needs. Clinical conversations are needed to identify the individual's support needs and develop tailored support plans. People with diabetes and their family members should be offered hypoglycaemia-specific education and training.",
keywords = "AWARENESS, EXPERIENCES, OUTCOMES, PEOPLE, UNAWARENESS",
author = "H. Chatwin and M. Broadley and C. Hendrieckx and J. Carlton and S. Heller and S.A. Amiel and B.E. Galan and N. Hermanns and K. Finke-Groene and J. Speight and F. Pouwer and {Hypo-RESOLVE Consortium}",
note = "Funding Information: This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement #777460. The JU receives support from the European Union's Horizon 2020 Research and Innovation Programme and EFPIA and T1D Exchange, JDRF, International Diabetes Federation (IDF), The Leona M. and Harry B. Helmsley Charitable Trust. CH and JS are supported by core funding to the Australian Centre for Behavioural Research in Diabetes provided by the collaboration between Diabetes Victoria and Deakin University. Funding Information: This project has received funding from the Innovative Medicines Initiative 2?Joint Undertaking (JU) under grant agreement #777460. The JU receives support from the European Union's Horizon 2020 Research and Innovation Programme and EFPIA and T1D Exchange, JDRF, International Diabetes Federation (IDF), The Leona M. and Harry B. Helmsley Charitable Trust. CH and JS are supported by core funding to the Australian Centre for Behavioural Research in Diabetes provided by the collaboration between Diabetes Victoria and Deakin University. The authors thank the adults with type 1 diabetes who participated in this study. The authors acknowledge Mette Valdersdorf Jensen, Manon Coolen, and Kevin Matlock (University of Southern Denmark) who contributed to development of the study concept, design, and protocol. The authors acknowledge Uffe S?holm, Nanna Lindekilde, Mette Valdersdorf Jensen and Manon Coolen (University of Southern Denmark) who translated survey materials. Publisher Copyright: {\textcopyright} 2021 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK.",
year = "2022",
month = jan,
doi = "10.1111/dme.14727",
language = "English",
volume = "39",
journal = "Diabetic Medicine",
issn = "0742-3071",
publisher = "Wiley",
number = "1",
}