Towards consensus: The need for standardised definitions in Long (post) COVID care in 34 European countries

  • Raquel Gomez-Bravo*
  • , Sandra Leon-Herrera
  • , Marina Guisado-Clavero
  • , Ileana Gefaell
  • , Xenia Wostmann
  • , Nathalie Wossner
  • , Shlomo Vinker
  • , Francesca Vassallo La Ferla
  • , Erva Kirkoc Ucuncu
  • , Georgi Tsigarovski
  • , Peter Torzsa
  • , Kadri Suija
  • , Aleksander Stepanovic
  • , Theresa Sentker
  • , Anna Segernas
  • , Bohumil Seifert
  • , Marta Sanchez-Castro
  • , Jochen G. Schneider
  • , Anna Repovska
  • , Ferdinando Petrazzuoli
  • Davorina Petek, Abel Perjes, Naldy Parodi Lopez, Ana Luisa Neves, Katarzyna Nessler, Jean Muris, Achim Mortsiefer, Sarah Moreels, Tatjana Meister, Pekka Mantyselka, Liubove Murauskiene, Heidrun Lingner, Anna Krzton-Krolewiecka, Milena Kostic, Busra Cimen Korkmaz, Snezana Knezevic, Stylianos Kazakos, Vasilis Karathanos, Ivanna Shushman, Oksana Ilkov, Kathryn Hoffmann, Bruno Heleno, Miroslav Hanzevacki, Dragan Gjorgjievski, Thomas Frese, Marta Fournier, Louise Fitzgerald, Sabine Feldmane, Marina Dotsenko, Philip-Richard Domeyer, Et al.
*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

BackgroundThe COVID-19 pandemic has significantly impacted global healthcare systems, leading to challenges in managing Long COVID. Variations in definitions and diagnostic criteria across Europe hinder recognition and treatment efforts. This study aims to analyse and compare the definitions of Long COVID used in 34 European countries.MethodsA retrospective descriptive study was conducted involving key informants from 34 European countries, utilising an online questionnaire to gather data on Long COVID definitions. Quantitative and qualitative analyses were employed to assess the variability of definitions and challenges in managing Long COVID.ResultsThe study found significant variation in Long COVID definitions among the participating countries; the most frequent definition was the other definition (n: 17, 50.0%), followed by the World Health Organisation's definition (n: 16, 47.0%) and the CDC definition (n: 11, 32.3%). Half of the countries reported using multiple definitions simultaneously, indicating a lack of standardisation. Qualitative analyses highlighted challenges such as difficulties in standardising terminology, variability in clinical criteria, and issues with implementing diagnostic codes.ConclusionThe findings underscore the need for a unified, yet adaptable, definition of Long COVID. Such a definition would support general practitioners (GPs) by simplifying diagnostic processes, improving continuity of care, and facilitating equitable patient access to multidisciplinary resources. The current lack of consensus complicates patient care, data collection, and resource allocation, impacting health policy development. Future efforts should focus on achieving agreement on definitions to ensure equitable treatment and effective healthcare responses to Long COVID.
Original languageEnglish
Article number2535618
Number of pages11
JournalEuropean Journal of General Practice
Volume31
Issue number1
DOIs
Publication statusPublished - 31 Dec 2025

Keywords

  • Primary health care
  • COVID-19
  • post-acute COVID-19 syndrome
  • diagnosis
  • clinical coding
  • Europe

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