TY - JOUR
T1 - Therapy-related stress in parents of children with a physical disability
T2 - a specific concept within the construct of parental stress
AU - Beckers, Laura W. M. E.
AU - Smeets, Rob J. E. M.
AU - van Der Burg, Jan J. W.
N1 - Funding Information:
This work was supported by Revalidatiefonds and Johanna Kinderfonds/Stichting Rotterdams Kinderrevalidatie Fonds Adriaanstichting through ZonMw, Revalidatiefonds, and Stichting Vooruit.
Publisher Copyright:
© 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2021/4/10
Y1 - 2021/4/10
N2 - Purpose: The aim of this article is to conceptualise the phenomenon of therapy-related parental stress in parents of children with a physical disability. Methods: Three models related to parental stress were reviewed, i.e., general parental stress, burden of caregiving in parents of children with physical disabilities, and experiences of these parents with their child's therapy. Results: The proposed definition of therapy-related parental stress is "the subjective stress and subsequent changes of functioning and health experienced by a parent of a child with a physical disability in response to paramedical therapies (i.e., physical, occupational, and/or speech and language therapy)". A theoretical model is proposed to describe the process of therapy-related parental stress. Available questionnaires will most likely not be valid and responsive to capture the (changes in) stress parents experience related to therapy their child receives. Conclusions: This article provides a first definition of therapy-related parental stress and a theoretical model to visualise the processes with regard to this topic. Empirical testing of the presented components and their coherence is needed to confirm or improve the model. A questionnaire that specifically measures the concept of therapy-related parental stress is needed, along with evaluating therapy-related parental stress in clinical practice and research.Indications for rehabilitation It is imperative to recognise paramedical therapies (i.e., physical, occupational, and speech and language therapy) as a potential stressor for parents of children with a physical disability, both in paediatric rehabilitation practice and research. A definition and theoretical model of therapy-related parental stress is proposed and the need for measures to evaluate this phenomenon is argued. The authors provide a starting point for the evidence base of the concept of therapy-related parental stress.
AB - Purpose: The aim of this article is to conceptualise the phenomenon of therapy-related parental stress in parents of children with a physical disability. Methods: Three models related to parental stress were reviewed, i.e., general parental stress, burden of caregiving in parents of children with physical disabilities, and experiences of these parents with their child's therapy. Results: The proposed definition of therapy-related parental stress is "the subjective stress and subsequent changes of functioning and health experienced by a parent of a child with a physical disability in response to paramedical therapies (i.e., physical, occupational, and/or speech and language therapy)". A theoretical model is proposed to describe the process of therapy-related parental stress. Available questionnaires will most likely not be valid and responsive to capture the (changes in) stress parents experience related to therapy their child receives. Conclusions: This article provides a first definition of therapy-related parental stress and a theoretical model to visualise the processes with regard to this topic. Empirical testing of the presented components and their coherence is needed to confirm or improve the model. A questionnaire that specifically measures the concept of therapy-related parental stress is needed, along with evaluating therapy-related parental stress in clinical practice and research.Indications for rehabilitation It is imperative to recognise paramedical therapies (i.e., physical, occupational, and speech and language therapy) as a potential stressor for parents of children with a physical disability, both in paediatric rehabilitation practice and research. A definition and theoretical model of therapy-related parental stress is proposed and the need for measures to evaluate this phenomenon is argued. The authors provide a starting point for the evidence base of the concept of therapy-related parental stress.
KW - Parental stress
KW - family-professional collaboration
KW - adverse effects of therapy
KW - paediatric rehabilitation
KW - theoretical model
KW - CEREBRAL-PALSY
KW - OCCUPATIONAL-THERAPY
KW - CHRONICALLY ILL
KW - PERSPECTIVES
KW - REHABILITATION
KW - INTERVENTION
KW - VALIDATION
KW - ADHERENCE
KW - DISTRESS
KW - CARE
U2 - 10.1080/09638288.2019.1646815
DO - 10.1080/09638288.2019.1646815
M3 - Article
C2 - 31424960
SN - 0963-8288
VL - 43
SP - 1185
EP - 1192
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
IS - 8
ER -