TY - JOUR
T1 - The political stakes of cancer epistemics
AU - Bhangu, Shagufta
AU - Argudo-Portal, Violeta
AU - Araújo Neto, Luiz Alves
AU - Cochrane, Thandeka
AU - Denisova, Masha
AU - Surawy-Stepney, Nickolas
N1 - Funding Information:
The research, writing, and publication of this paper was possible thanks to the following funding: Grid Oncology Project (Wellcome Trust - ID 214920/Z/18/Z, PI Carlo Caduff); Ifgene Project (MCIN/AEI/10.13039/501100011033 - ID PID2020-115899GB-I00, PI Mauro Turrini and Ruben Blanco); Juan de la Cierva Fellowship (Grant FJC2021-046469-I funded by MCIN/AEI/10.13039/501100011033 and the European Union \"NextGenerationEU\"/PRTR, PI Violeta Argudo-Portal); Funda\u00E7\u00E3o de Amparo \u00E0 Pesquisa do Estado do Rio de Janeiro (E-26/202.303/2019, PI Luiz Alves Ara\u00FAjo Neto); Cartographies of Cancer Project (Wellcome Trust- ID 221269/Z/20/Z, PI David Reubi); EU-Marie Sk\u0142odowska-Curie Actions grant (Horizon 2020; grant agreement: 861034, PI Masha Denisova).
Publisher Copyright:
© 2024 The Authors
PY - 2024/10/1
Y1 - 2024/10/1
N2 - We demonstrate a transnationally situated dialogue as a method to bring ethnographic and historical research in Brazil, East Africa (Kenya, Tanzania and Uganda), India, Russia and Spain into conversation to show three cancer epistemics sites (research, detection, and care access) where the politics of cancer epistemics are at play. First, in the field of research, we show how certain ways of knowing, and certain questions about and interests in cancer, are privileged over others. Using examples from Spain and East Africa, we highlight how a shift towards microbiological and high-technology research has outpriced many more locally grounded research agendas, ignoring questions of industrial and capital accountability in cancer aetiology. Second, we look at ways of making cancer visible, how knowledge is mobilised in cancer detection and screening, where and for whom. We discuss the increased individualisation of risk which is reframing cancer surveillance and therapeutic agendas. Using examples from India, Spain and Brazil, we demonstrate how the epistemics of cancer detection generate discourses of blame and responsibility at the individual level and accentuate existing inequities whilst simultaneously absorbing patients and their families into complex networks of surveillance. Lastly, we examine how the epistemics of cancer implicate the very possibilities of accessing cancer care, shaping care pathways and possibilities for patients. With ethnographic examples from India, Russia and Brazil, we demonstrate how an orientation towards the individual shifts attention away from the commercialisation of healthcare and dominance of logics of profit in therapeutics. Throughout the paper, we point towards what is holding these cancer discourses together and grapple with how the politics of cancer epistemics are at play across the globe, even if they appear to be taking many different forms. Our approach highlights how practices are mirrored in the framing, implementation, detection and care of cancer with far-reaching effects.
AB - We demonstrate a transnationally situated dialogue as a method to bring ethnographic and historical research in Brazil, East Africa (Kenya, Tanzania and Uganda), India, Russia and Spain into conversation to show three cancer epistemics sites (research, detection, and care access) where the politics of cancer epistemics are at play. First, in the field of research, we show how certain ways of knowing, and certain questions about and interests in cancer, are privileged over others. Using examples from Spain and East Africa, we highlight how a shift towards microbiological and high-technology research has outpriced many more locally grounded research agendas, ignoring questions of industrial and capital accountability in cancer aetiology. Second, we look at ways of making cancer visible, how knowledge is mobilised in cancer detection and screening, where and for whom. We discuss the increased individualisation of risk which is reframing cancer surveillance and therapeutic agendas. Using examples from India, Spain and Brazil, we demonstrate how the epistemics of cancer detection generate discourses of blame and responsibility at the individual level and accentuate existing inequities whilst simultaneously absorbing patients and their families into complex networks of surveillance. Lastly, we examine how the epistemics of cancer implicate the very possibilities of accessing cancer care, shaping care pathways and possibilities for patients. With ethnographic examples from India, Russia and Brazil, we demonstrate how an orientation towards the individual shifts attention away from the commercialisation of healthcare and dominance of logics of profit in therapeutics. Throughout the paper, we point towards what is holding these cancer discourses together and grapple with how the politics of cancer epistemics are at play across the globe, even if they appear to be taking many different forms. Our approach highlights how practices are mirrored in the framing, implementation, detection and care of cancer with far-reaching effects.
U2 - 10.1016/j.socscimed.2024.117176
DO - 10.1016/j.socscimed.2024.117176
M3 - Article
SN - 0277-9536
VL - 359
JO - Social Science & Medicine
JF - Social Science & Medicine
M1 - 117176
ER -