The patient with a complex chronic respiratory disease: a specialist of his own life?

Sarah Houben-Wilke*, Ingrid M. L. Augustin, Birgit B. R. E. F. Wouters, Rosita A. H. Stevens, Daisy J. A. Janssen, Martijn A. Spruit, Lowie E. G. W. Vanfleteren, Frits M. E. Franssen, Emiel F. M. Wouters

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Introduction: The independent and central role of the patient with a complex chronic respiratory disease in targeted, personalized disease management strategies is becoming increasingly important. Patients are the ones living with the disease and are finally responsible for their lives underlining their role as essential members of the interdisciplinary treatment team.Areas covered: The present paper narratively reviews existing research and discusses the special, as well as specialized, role of the patient with a complex chronic respiratory disease in the healthcare system and highlights fundamental elements of the (future) relationship between patient and healthcare professionals.Expert commentary: Since the chronic respiratory disease at hand is part of the patient's entire life, we need holistic, personalized approaches optimizing patients' quality of life by not only treating the disease but considering the patients' whole environment and where healthcare professionals and patients are co-creating value care.

Original languageEnglish
Pages (from-to)919-924
Number of pages6
JournalExpert Review of Respiratory Medicine
Volume11
Issue number12
DOIs
Publication statusPublished - 2017

Keywords

  • Chronic obstructive pulmonary disease
  • expert patient
  • self-management
  • shared decision making
  • value-based health care
  • OBSTRUCTIVE PULMONARY-DISEASE
  • VALUE CO-CREATION
  • QUALITY-OF-LIFE
  • HEALTH-CARE
  • INFORMAL CAREGIVERS
  • SELF-MANAGEMENT
  • REHABILITATION
  • COMMUNICATION
  • PREFERENCES
  • PERCEPTIONS

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