The Googlization of health research: From disruptive innovation to disruptive ethics

Tamar Sharon

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Consumer-oriented mobile technologies offer new ways of capturing multidimensional health data, and are increasingly seen as facilitators of medical research. This has opened the way for large consumer tech companies, like Apple, Google, Amazon and Facebook, to enter the space of health research, offering new methods for collecting, storing and analyzing health data. While these developments are often portrayed as ‘disrupting’ research in beneficial ways, they also raise many ethical issues. These can be organized into three clusters: questions concerning the quality of research; privacy/informed consent; and new power asymmetries based on access to data and control over technological infrastructures. I argue that this last cluster, insofar as it may affect future research agendas, deserves more critical attention.
Original languageEnglish
Pages (from-to)563-574
Number of pages12
JournalPersonalized Medicine
Volume13
Issue number6
Early online date13 Oct 2016
DOIs
Publication statusPublished - Nov 2016

Keywords

  • 23andMe
  • Baseline Study
  • CARE
  • ERA
  • Google Genomics
  • ISSUES
  • ONLINE
  • PERSONALIZED MEDICINE
  • ResearchKit
  • SCIENCES
  • TECHNOLOGIES
  • big data
  • data-intensive medicine
  • ethical issues
  • health apps
  • privacy

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