The Adaptation of Self-Report Measures to the Needs of People With Intellectual Disabilities: A Systematic Review

R. Kooijmans; G. Mercera; P.E. Langdon; X. Moonen

doi:10.1037/cps0000058

The Adaptation of Self-Report Measures to the Needs of People With Intellectual Disabilities: A Systematic Review

R. Kooijmans^*, G. Mercera, P.E. Langdon, X. Moonen

^*Corresponding author for this work

Research output: Contribution to journal › (Systematic) Review article › peer-review

Abstract

Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop “ID-inclusive” self-report measures. A search of PsycINFO, PubMed, Web of Science, and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. One hundred sixty-one recommendations for the development of “ID-inclusive” self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a five-stage model of instrument development. This review offers much-needed practical guidance for clinicians and researchers on how to develop “ID-inclusive” self-report measures. Recommendations for future research about selfreport instrument development for use with people with ID are presented.

Original language	English
Pages (from-to)	250-271
Number of pages	22
Journal	Clinical Psychology-Science and Practice
Volume	29
Issue number	3
Early online date	3 Feb 2022
DOIs	https://doi.org/10.1037/cps0000058
Publication status	Published - Sept 2022

Keywords

ACQUIESCENCE
ADULTS
CHILDREN
HEALTH
LEARNING-DISABILITY
METHODOLOGICAL ISSUES
MILD
PSYCHOMETRIC PROPERTIES
QUALITY-OF-LIFE
RATING ANXIETY SCALE
intellectual disabilities
interviews
psychometrics
questionnaires
self-report
Intellectual disabilities
Psychometrics
Self-report
Questionnaires
Interviews

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10.1037/cps0000058

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@article{315d453d4fbf4eb4814acd29d36fb878,

title = "The Adaptation of Self-Report Measures to the Needs of People With Intellectual Disabilities: A Systematic Review",

abstract = "Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop “ID-inclusive” self-report measures. A search of PsycINFO, PubMed, Web of Science, and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. One hundred sixty-one recommendations for the development of “ID-inclusive” self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a five-stage model of instrument development. This review offers much-needed practical guidance for clinicians and researchers on how to develop “ID-inclusive” self-report measures. Recommendations for future research about selfreport instrument development for use with people with ID are presented.",

keywords = "ACQUIESCENCE, ADULTS, CHILDREN, HEALTH, LEARNING-DISABILITY, METHODOLOGICAL ISSUES, MILD, PSYCHOMETRIC PROPERTIES, QUALITY-OF-LIFE, RATING ANXIETY SCALE, intellectual disabilities, interviews, psychometrics, questionnaires, self-report, Intellectual disabilities, Psychometrics, Self-report, Questionnaires, Interviews",

author = "R. Kooijmans and G. Mercera and P.E. Langdon and X. Moonen",

note = "Funding Information: The authors thank Janneke Staaks at the University of Amsterdam, for her invaluable guidance with drawing up and executing the search strategy, and Martina de Witte for providing very valuable feedback on earlier versions of the article. This research did not receive any specific grant from funding agencies in the public, commercial, or not-for-profit sectors. All authors declare that they have no conflicts of interest. Publisher Copyright: {\textcopyright} 2022 American Psychological Association",

year = "2022",

month = sep,

doi = "10.1037/cps0000058",

language = "English",

volume = "29",

pages = "250--271",

journal = "Clinical Psychology-Science and Practice",

issn = "0969-5893",

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AU - Kooijmans, R.

AU - Mercera, G.

AU - Langdon, P.E.

AU - Moonen, X.

N1 - Funding Information: The authors thank Janneke Staaks at the University of Amsterdam, for her invaluable guidance with drawing up and executing the search strategy, and Martina de Witte for providing very valuable feedback on earlier versions of the article. This research did not receive any specific grant from funding agencies in the public, commercial, or not-for-profit sectors. All authors declare that they have no conflicts of interest. Publisher Copyright: © 2022 American Psychological Association

PY - 2022/9

Y1 - 2022/9

N2 - Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop “ID-inclusive” self-report measures. A search of PsycINFO, PubMed, Web of Science, and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. One hundred sixty-one recommendations for the development of “ID-inclusive” self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a five-stage model of instrument development. This review offers much-needed practical guidance for clinicians and researchers on how to develop “ID-inclusive” self-report measures. Recommendations for future research about selfreport instrument development for use with people with ID are presented.

AB - Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop “ID-inclusive” self-report measures. A search of PsycINFO, PubMed, Web of Science, and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. One hundred sixty-one recommendations for the development of “ID-inclusive” self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a five-stage model of instrument development. This review offers much-needed practical guidance for clinicians and researchers on how to develop “ID-inclusive” self-report measures. Recommendations for future research about selfreport instrument development for use with people with ID are presented.

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KW - MILD

KW - PSYCHOMETRIC PROPERTIES

KW - QUALITY-OF-LIFE

KW - RATING ANXIETY SCALE

KW - intellectual disabilities

KW - interviews

KW - psychometrics

KW - questionnaires

KW - self-report

KW - Intellectual disabilities

KW - Psychometrics

KW - Self-report

KW - Questionnaires

KW - Interviews

U2 - 10.1037/cps0000058

DO - 10.1037/cps0000058

M3 - (Systematic) Review article

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JO - Clinical Psychology-Science and Practice

JF - Clinical Psychology-Science and Practice

IS - 3

ER -

The Adaptation of Self-Report Measures to the Needs of People With Intellectual Disabilities: A Systematic Review

Abstract

Keywords

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