Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study

  • Jolanda H. H. M. Friesen-Storms*
  • , Danny J. L. Quadvlieg-Delnoy
  • , Roel J. W. van Kampen
  • , Trudy van der Weijden
  • , Emmylou Beekman
  • , Gerrie J. J. W. Bours
  • , Kon-Siong G. Jie
  • *Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: "my health," "my activities," "my environment" and "my own way." Most challenges were experienced in the domain of "my health," which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.
Original languageEnglish
Article number23743735231204470
Number of pages5
JournalJournal of Patient Experience
Volume10
Issue number1
Early online date5 Oct 2023
DOIs
Publication statusPublished - 2023

Keywords

  • lymphoma survivorship
  • aftercare
  • goal setting
  • shared decision-making
  • SHARED DECISION-MAKING
  • CANCER
  • SURVIVORS
  • CARE

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