Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases

Tamar Sharon - Schneidleder; Aicardi, Christine; Del Savio Lorenzo; Dove, Edward; Lucivero, Federica; Mittelstadt Brent; Niezen, Maartje; Prainsack, Barbara; Reinsborough, Michael

Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases

Tamar Sharon - Schneidleder
, Aicardi, Christine
, Del Savio Lorenzo
, Dove, Edward
, Lucivero, Federica
, Mittelstadt Brent
, Niezen, Maartje
, Prainsack, Barbara
, Reinsborough, Michael

Research output: Non-textual / digital / web - outputs › Web publication/site › Academic

Abstract

Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.

Original language	English
Publisher	The Hastings Center
Media of output	Online
Publication status	Published - 2 Nov 2016

Cite this

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title = "Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases",

abstract = "Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.",

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AU - Brent, Mittelstadt

AU - Maartje, Niezen,

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AB - Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.

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Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases

Abstract

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