TY - ADVS
T1 - Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases
AU - Sharon - Schneidleder, Tamar
AU - Christine, Aicardi,
AU - Lorenzo, Del Savio
AU - Edward, Dove,
AU - Federica, Lucivero,
AU - Brent, Mittelstadt
AU - Maartje, Niezen,
AU - Barbara, Prainsack,
AU - Michael, Reinsborough,
PY - 2016/11/2
Y1 - 2016/11/2
N2 - Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.
AB - Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.
UR - http://www.thehastingscenter.org/shortcomings-world-medical-associations-revised-declaration-ethical-use-health-databases/
M3 - Web publication/site
PB - The Hastings Center
ER -