Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases

Tamar Sharon - Schneidleder, Aicardi, Christine, Del Savio Lorenzo, Dove, Edward, Lucivero, Federica, Mittelstadt Brent, Niezen, Maartje, Prainsack, Barbara, Reinsborough, Michael

Research output: Non-textual formWeb publication/siteAcademic

Abstract

Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.
Original languageEnglish
PublisherThe Hastings Center
Media of outputOnline
Publication statusPublished - 2 Nov 2016

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