Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks.
|Publisher||The Hastings Center|
|Media of output||Online|
|Publication status||Published - 2 Nov 2016|
Sharon - Schneidleder, T. (Author), Christine, A. (Author), Lorenzo, D. S. (Author), Edward, D. (Author), Federica, L. (Author), Brent, M. (Author), Maartje, N. (Author), Barbara, P. (Author), & Michael, R. (Author). (2016). Shortcomings of the revised “Helsinki Declaration” on ethical use of health databases. Web publication/site, The Hastings Center.