TY - JOUR
T1 - Shared decision making in oncology
T2 - A model based on patients', health care professionals', and researchers' views
AU - Bomhof-Roordink, Hanna
AU - Fischer, Maarten J.
AU - van Duijn-Bakker, Nanny
AU - Baas-Thijssen, Monique C.
AU - van der Weijden, Trudy
AU - Stiggelbout, Anne M.
AU - Pieterse, Arwen H.
N1 - Funding Information:
We thank all participants for their time and effort. We thank Jan Schoones for his assistance in performing the literature search that informed the interview guide, Alex Chi, Anine Griffioen, Ikrame Zbairi, Marjolijn Dijkhuis, Martine van Eijk for their help in transcribing the audiotaped interviews, Dr Fania Gärtner for her contribution to the discussion about the preliminary findings, Bertus Bomhof MSc for his contribution to the design of Figure 1, and Professor Glyn Elwyn, Professor Martin Härter, Professor France Légaré, and Professor Richard Street for their willingness to be member of our advisory committee. This study was supported by a grant from the Dutch Cancer Society (UL2013‐6108).
Publisher Copyright:
© 2018 John Wiley & Sons, Ltd.
PY - 2019/1
Y1 - 2019/1
N2 - Objective To construct a model of shared decision making (SDM) about cancer treatment by conducting an extensive consultation of stakeholders, informed by the literature. Methods We interviewed 76 stakeholders: cancer patients, potential future patients, oncologists, nurses, and SDM-researchers. We asked, "If I say 'Doctors and patients making decisions together about cancer treatment,' what does this make you think about?" Ideas were further solicited by presenting 19 cards each describing a possible SDM element. Interviews were inductively coded and analysed, and the emerging themes were integrated into a model. Results The model that was based on participants' views assigns specific roles in SDM to both oncologists and patients. Oncologists determine possible treatments, emphasise the importance of patients' opinion, explain treatment options, get to know patients, guide patients, and provide treatment recommendations. Patients ask questions, express thoughts and feelings, consider options, offer opinions, and decide or delegate decisions to oncologists. Outside consultations, patients search for information, prepare questions, and consider options. Conclusions Next to oncologists' role, cancer patients also have a clear role in SDM about cancer treatment, during and outside consultations. Patients should receive the support they need to fulfil this requirement.
AB - Objective To construct a model of shared decision making (SDM) about cancer treatment by conducting an extensive consultation of stakeholders, informed by the literature. Methods We interviewed 76 stakeholders: cancer patients, potential future patients, oncologists, nurses, and SDM-researchers. We asked, "If I say 'Doctors and patients making decisions together about cancer treatment,' what does this make you think about?" Ideas were further solicited by presenting 19 cards each describing a possible SDM element. Interviews were inductively coded and analysed, and the emerging themes were integrated into a model. Results The model that was based on participants' views assigns specific roles in SDM to both oncologists and patients. Oncologists determine possible treatments, emphasise the importance of patients' opinion, explain treatment options, get to know patients, guide patients, and provide treatment recommendations. Patients ask questions, express thoughts and feelings, consider options, offer opinions, and decide or delegate decisions to oncologists. Outside consultations, patients search for information, prepare questions, and consider options. Conclusions Next to oncologists' role, cancer patients also have a clear role in SDM about cancer treatment, during and outside consultations. Patients should receive the support they need to fulfil this requirement.
KW - cancer
KW - interviews
KW - model
KW - oncology
KW - perspectives
KW - SDM
KW - shared decision making
KW - stakeholders
KW - treatment decision making
KW - views
KW - CANCER-TREATMENT
KW - PARTICIPATION
KW - PERCEPTIONS
KW - INVOLVEMENT
KW - INFORMATION
U2 - 10.1002/pon.4923
DO - 10.1002/pon.4923
M3 - Article
C2 - 30346076
SN - 1057-9249
VL - 28
SP - 139
EP - 146
JO - Psycho-Oncology
JF - Psycho-Oncology
IS - 1
ER -