Sexuality and individual support plans for people with intellectual disabilities

J M T Stoffelen, M. A. Herps, W H E Buntinx, D Schaafsma, G Kok, L M G Curfs

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

BACKGROUND: Sexual rights and sexuality are important aspects of quality of life, also for people with intellectual disabilities (IDs). However, providing support in this area to people with ID poses some challenges. In this study, the content of individual support plan (ISP) documents was analysed to determine the extent to which sexuality and sexual rights are addressed in part of the ISP documents.

METHOD: Content analysis was carried out on a sample of 187 ISP documents from seven different service provider organisations in the Netherlands. First, we conducted a lexical search using terms related to sexuality and sexual health. The retrieved segments were then analysed.

RESULTS: A total of 159 ISP documents (85%) of 60 men and 99 women contained some reference to aspects of sexuality. However, these references were mostly descriptive and offered little guidance in terms of providing support. Moreover, these notations mostly described negative or problematic aspects of sexuality. References to sexual education, treatment, intervention programs or support strategies were rarely found in the ISP documents.

CONCLUSIONS: Although sexuality is addressed in most ISP documents, there is little information available about the provision of professional support in this area that would give people the opportunity to exert sexual rights. As sexuality and exerting sexual rights are important for people with ID as well as for other people, it is recommended that issues surrounding proactive sex education, shared decision-making and the implementation of sexual healthcare plans are addressed in the ISP.

Original languageEnglish
Pages (from-to)1117-1129
Number of pages13
JournalJournal of Intellectual Disability Research
Volume61
Issue number12
DOIs
Publication statusPublished - Dec 2017

Keywords

  • Journal Article
  • sexuality
  • SERVICES
  • SEX-EDUCATION
  • ADULTS
  • CARE
  • EXPERIENCES
  • ABUSE
  • sexual rights
  • STAFF
  • OUTCOMES
  • individual support plans
  • NETHERLANDS
  • EXPECTATIONS

Cite this

Stoffelen, J M T ; Herps, M. A. ; Buntinx, W H E ; Schaafsma, D ; Kok, G ; Curfs, L M G. / Sexuality and individual support plans for people with intellectual disabilities. In: Journal of Intellectual Disability Research. 2017 ; Vol. 61, No. 12. pp. 1117-1129.
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title = "Sexuality and individual support plans for people with intellectual disabilities",
abstract = "BACKGROUND: Sexual rights and sexuality are important aspects of quality of life, also for people with intellectual disabilities (IDs). However, providing support in this area to people with ID poses some challenges. In this study, the content of individual support plan (ISP) documents was analysed to determine the extent to which sexuality and sexual rights are addressed in part of the ISP documents.METHOD: Content analysis was carried out on a sample of 187 ISP documents from seven different service provider organisations in the Netherlands. First, we conducted a lexical search using terms related to sexuality and sexual health. The retrieved segments were then analysed.RESULTS: A total of 159 ISP documents (85{\%}) of 60 men and 99 women contained some reference to aspects of sexuality. However, these references were mostly descriptive and offered little guidance in terms of providing support. Moreover, these notations mostly described negative or problematic aspects of sexuality. References to sexual education, treatment, intervention programs or support strategies were rarely found in the ISP documents.CONCLUSIONS: Although sexuality is addressed in most ISP documents, there is little information available about the provision of professional support in this area that would give people the opportunity to exert sexual rights. As sexuality and exerting sexual rights are important for people with ID as well as for other people, it is recommended that issues surrounding proactive sex education, shared decision-making and the implementation of sexual healthcare plans are addressed in the ISP.",
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Sexuality and individual support plans for people with intellectual disabilities. / Stoffelen, J M T; Herps, M. A.; Buntinx, W H E; Schaafsma, D; Kok, G; Curfs, L M G.

In: Journal of Intellectual Disability Research, Vol. 61, No. 12, 12.2017, p. 1117-1129.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Sexuality and individual support plans for people with intellectual disabilities

AU - Stoffelen, J M T

AU - Herps, M. A.

AU - Buntinx, W H E

AU - Schaafsma, D

AU - Kok, G

AU - Curfs, L M G

N1 - © 2017 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disibilities and John Wiley & Sons Ltd.

PY - 2017/12

Y1 - 2017/12

N2 - BACKGROUND: Sexual rights and sexuality are important aspects of quality of life, also for people with intellectual disabilities (IDs). However, providing support in this area to people with ID poses some challenges. In this study, the content of individual support plan (ISP) documents was analysed to determine the extent to which sexuality and sexual rights are addressed in part of the ISP documents.METHOD: Content analysis was carried out on a sample of 187 ISP documents from seven different service provider organisations in the Netherlands. First, we conducted a lexical search using terms related to sexuality and sexual health. The retrieved segments were then analysed.RESULTS: A total of 159 ISP documents (85%) of 60 men and 99 women contained some reference to aspects of sexuality. However, these references were mostly descriptive and offered little guidance in terms of providing support. Moreover, these notations mostly described negative or problematic aspects of sexuality. References to sexual education, treatment, intervention programs or support strategies were rarely found in the ISP documents.CONCLUSIONS: Although sexuality is addressed in most ISP documents, there is little information available about the provision of professional support in this area that would give people the opportunity to exert sexual rights. As sexuality and exerting sexual rights are important for people with ID as well as for other people, it is recommended that issues surrounding proactive sex education, shared decision-making and the implementation of sexual healthcare plans are addressed in the ISP.

AB - BACKGROUND: Sexual rights and sexuality are important aspects of quality of life, also for people with intellectual disabilities (IDs). However, providing support in this area to people with ID poses some challenges. In this study, the content of individual support plan (ISP) documents was analysed to determine the extent to which sexuality and sexual rights are addressed in part of the ISP documents.METHOD: Content analysis was carried out on a sample of 187 ISP documents from seven different service provider organisations in the Netherlands. First, we conducted a lexical search using terms related to sexuality and sexual health. The retrieved segments were then analysed.RESULTS: A total of 159 ISP documents (85%) of 60 men and 99 women contained some reference to aspects of sexuality. However, these references were mostly descriptive and offered little guidance in terms of providing support. Moreover, these notations mostly described negative or problematic aspects of sexuality. References to sexual education, treatment, intervention programs or support strategies were rarely found in the ISP documents.CONCLUSIONS: Although sexuality is addressed in most ISP documents, there is little information available about the provision of professional support in this area that would give people the opportunity to exert sexual rights. As sexuality and exerting sexual rights are important for people with ID as well as for other people, it is recommended that issues surrounding proactive sex education, shared decision-making and the implementation of sexual healthcare plans are addressed in the ISP.

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KW - SERVICES

KW - SEX-EDUCATION

KW - ADULTS

KW - CARE

KW - EXPERIENCES

KW - ABUSE

KW - sexual rights

KW - STAFF

KW - OUTCOMES

KW - individual support plans

KW - NETHERLANDS

KW - EXPECTATIONS

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DO - 10.1111/jir.12428

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VL - 61

SP - 1117

EP - 1129

JO - Journal of Intellectual Disability Research

JF - Journal of Intellectual Disability Research

SN - 0964-2633

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ER -