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Seventh Åland Island Meeting on von Willebrand Disease

  • Riitta Lassila*
  • , Ruben Bierings
  • , Nathan T. Connell
  • , Fernando F. Corrales-Medina
  • , Augusto B. Federici
  • , Veronica H. Flood
  • , Floor Heubel-Moenen
  • , Jill M. Johnsen
  • , Geoffrey Kuppens
  • , Davide Matino
  • , Carolyn Millar
  • , Ingmar Schoen
  • , Anish Sharda
  • , Robert F. Sidonio Jr
  • , Alok Srivastava
  • , Timea Szanto
  • , Angela C. Weyand
  • , Erik Berntorp
  • *Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Introduction: The seventh Åland Island Meeting on von Willebrand Disease (VWD) was held on the Åland archipelago in Finland, from 26 to 28 September 2024. Aim: The meeting brought together experts in the field of VWD from around the world to share the latest advances and knowledge in VWD. Results and Discussion: The topics covered both clinical aspects of management and biochemical and laboratory insights into the disease. The clinical topics discussed included epidemiology of VWD, the diagnostic landscape and treatment strategies. Special attention was paid to the challenges of VWD in women and to the definition of disease severity, both key areas of ongoing clinical debate. Emerging research in bleeding disorders was also highlighted. Much has been achieved in the diagnosis and treatment of VWD, and the outlook is positive for people with VWD, who can expect continued improvements in their care in the coming years. To ensure optimal translation of increased understanding to improved care of people with VWD, a multidisciplinary approach with biochemists, geneticists and cell biologists partnering with clinicians and industry is needed.

Original languageEnglish
Pages (from-to)S3-S25
Number of pages24
JournalHaemophilia
Volume32
Issue numberS3
Early online date2026
DOIs
Publication statusPublished - Aug 2026

Keywords

  • diagnostic techniques and procedures
  • prophylaxis
  • von Willebrand disease
  • von Willebrand factor
  • women's health
  • QUALITY-OF-LIFE
  • WFH 2021 GUIDELINES
  • UNKNOWN CAUSE
  • FACTOR-VIII
  • REPLACEMENT THERAPY
  • BLEEDING DISORDERS
  • AFRICAN-AMERICANS
  • ADULT PATIENTS
  • VWF ACTIVITY
  • DIAGNOSIS

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