TY - JOUR
T1 - Remote Monitoring Instruments in Palliative Care for People With Heart Failure
T2 - A Scoping Review
AU - De Leeuw, Jeanine C.B.
AU - Goërtz, Yvonne M.J.
AU - Wallin, Malin K.
AU - Jaarsma, Tiny
AU - Friedrichsen, Maria
AU - Jaarsma, Pier
AU - Strömberg, Anna
AU - Kurpas, Donata
AU - Stefanicka-Wojtas, Dorota
AU - Geersing, Geert Jan
AU - de Graaf, Everlien
AU - Brunner-La Rocca, Hans Peter
AU - Janssen, Daisy J.A.
AU - Grice-Jackson, Thomas
AU - RAPHAEL consortium
N1 - Funding Information:
Funding : This review is part of the RAPHAEL project which has received funding from the European Union\u2019s Horizon Europe research and innovation program under the grant agreement No 101137170. Disclaimer: Views and opinions expressed are, however, those of the author(s) only and do not necessarily reflect those of the European Union. Neither the European Union nor the granting authority can be held responsible for them.
Publisher Copyright:
© 2026 The Author(s). Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. This is an open access article under the CC BY license. http://creativecommons.org/licenses/by/4.0/
PY - 2026/6
Y1 - 2026/6
N2 - Background: Remote monitoring could improve the management of symptoms, wishes, and needs of patients with heart failure receiving palliative care. However, an overview of existing instruments is lacking, and implementation challenges are poorly understood. Aim: To map and analyze existing instruments used to monitor symptoms, wishes, and needs in heart failure palliative care, and to evaluate their implementation. Design: This scoping review, conducted as part of the HORIZON Europe-funded RAPHAEL project, followed the framework developed by Arksey and O’Malley. Data sources: A systematic search was executed using seven databases (PubMed, Cinahl, Embase, Scopus, PsycINFO, Web of Science, and Medline) on December 11, 2024. Eligible publications focused on remote monitoring of symptoms, wishes, or needs of patients with heart failure in palliative care. Results: Of the 3820 identified studies, 23 met the inclusion criteria, of which 20 were conducted in Western countries. None of the included studies described a monitoring instrument that simultaneously evaluated symptoms, wishes, and needs. Most instruments (n = 22) focused primarily on monitoring physical symptoms and were not specifically designed for palliative care. Only one instrument monitored wishes and needs, but it did not assess symptoms. Details on implementation were often insufficient. Conclusions: Currently no instruments are available that monitor both symptoms as well as identify the wishes and needs of patients with heart failure who receive palliative care. The RAPHAEL project aims to fill this gap by developing an instrument for this purpose whilst assessing its implementation into practice.Registration: Open Science Framework (OSF) (DOI: https://doi.org/10.17605/OSF.IO/5GAFM)
AB - Background: Remote monitoring could improve the management of symptoms, wishes, and needs of patients with heart failure receiving palliative care. However, an overview of existing instruments is lacking, and implementation challenges are poorly understood. Aim: To map and analyze existing instruments used to monitor symptoms, wishes, and needs in heart failure palliative care, and to evaluate their implementation. Design: This scoping review, conducted as part of the HORIZON Europe-funded RAPHAEL project, followed the framework developed by Arksey and O’Malley. Data sources: A systematic search was executed using seven databases (PubMed, Cinahl, Embase, Scopus, PsycINFO, Web of Science, and Medline) on December 11, 2024. Eligible publications focused on remote monitoring of symptoms, wishes, or needs of patients with heart failure in palliative care. Results: Of the 3820 identified studies, 23 met the inclusion criteria, of which 20 were conducted in Western countries. None of the included studies described a monitoring instrument that simultaneously evaluated symptoms, wishes, and needs. Most instruments (n = 22) focused primarily on monitoring physical symptoms and were not specifically designed for palliative care. Only one instrument monitored wishes and needs, but it did not assess symptoms. Details on implementation were often insufficient. Conclusions: Currently no instruments are available that monitor both symptoms as well as identify the wishes and needs of patients with heart failure who receive palliative care. The RAPHAEL project aims to fill this gap by developing an instrument for this purpose whilst assessing its implementation into practice.Registration: Open Science Framework (OSF) (DOI: https://doi.org/10.17605/OSF.IO/5GAFM)
KW - Heart failure
KW - needs assessment
KW - palliative care
KW - remote patient monitoring
KW - scoping review
KW - symptom assessment
U2 - 10.1016/j.jpainsymman.2026.02.016
DO - 10.1016/j.jpainsymman.2026.02.016
M3 - (Systematic) Review article
SN - 0885-3924
VL - 71
SP - e696-e710
JO - Journal of Pain and Symptom Management
JF - Journal of Pain and Symptom Management
IS - 6
ER -