@article{33dab335fa704410a9acfadd511d8c6c,
title = "Relationship quality and sense of coherence in dementia: Results of a European cohort study",
abstract = "Objective Quality of life of people with dementia and their family carers is strongly influenced by interpersonal issues and personal resources. In this context, relationship quality (RQ) and sense of coherence (SOC) potentially protect and promote health. We aimed to identify what influences RQ in dyads of people with dementia and their carers and to examine differences in their perspectives. Methods Cross-sectional data were used from the Actifcare cohort study of 451 community-dwelling people with dementia and their primary carers in eight European countries. Comprehensive assessments included the Positive Affect Index (RQ) and the Orientation to Life Questionnaire (SOC). Results Regression analyses revealed that RQ as perceived by people with dementia was associated with carer education, stress, and spouse caregiving. RQ as perceived by carers was associated with carer stress, depression, being a spouse, social support, reported neuropsychiatric symptoms of dementia, and carer SOC. Neuropsychiatric symptoms and carer stress contributed to discrepancies in RQ ratings within the dyad. The only factor associated with both individual RQ ratings and discrepancies was carer stress (negative feelings subscore). No significant differences in the overall perception of RQ were evident between spouses and adult children carers, but RQ determinants differed between the two. Conclusions In this European sample, carer SOC was associated with carer-reported RQ. RQ determinants differed according to the perspective considered (person with dementia or carer) and carer subgroup. A deeper understanding of RQ and its determinants will help to tailor interventions that address these distinct perspectives and potentially improve dementia outcomes.",
keywords = "Alzheimer disease, dementia, dyadic perspective, family care, relationship quality, sense of coherence, PREMORBID RELATIONSHIP, ANTONOVSKYS SENSE, CAREGIVER BURDEN, PEOPLE, HEALTH, CARE, PREDICTORS, DEPRESSION, ANXIETY, SCALE",
author = "Marques, {Maria J.} and Bob Woods and Louise Hopper and Hannah Jelley and Kate Irving and Liselot Kerpershoek and Gabriele Meyer and Anja Bieber and Astrid Stephan and Anders Skoeldunger and Britt-Marie Sjolund and Geir Selbaek and Janne Rosvik and Orazio Zanetti and Elisa Portolani and {de Vugt}, Marjolein and Frans Verhey and Manuel Goncalves-Pereira and {ActifCare Consortium}",
note = "Funding Information: This is an EU Joint Programme—Neurodegenerative Disease Research (JPND) project (http://www.jpnd.eu). The Actifcare Consortium partners are as follows: Coordinator: Maastricht University (NL): Frans Verhey (scientific coordinator, WP1 leader). Consortium members: Maastricht University (NL): Marjolein de Vugt, Claire Wolfs, Ron Handels, and Liselot Kerpershoek. Martin-Luther University Halle-Wittenberg (DE): Gabriele Meyer (WP2 leader), Astrid Stephan, Anja Bieber, Anja Broda, and Gabriele Bartoszek. Bangor University (UK): Bob Woods (WP3 leader) and Hannah Jelley. Nottingham University (UK): Martin Orrell. Karolinska Institutet (SE): Anders Wimo (WP4 leader), Anders Sk{\"o}ldunger, and Britt-Marie Sj{\"o}lund. Oslo University Hospital (NO): Knut Engedal, Geir Selbaek (WP5 leader), Mona Michelet, Janne Rosvik, and Siren Eriksen. Dublin City University (IE): Kate Irving (WP6 leader), Louise Hopper, and Rachael Joyce. Excluir IRCCS Centro S. Giovanni di Dio (IT): Orazio Zanetti and Elisa Portolani. CEDOC, NOVA Medical School, Faculdade de Ci{\^e}ncias M{\'e}dicas, Universidade Nova de Lisboa (PT): Manuel Gon{\c c}alves-Pereira, Maria J. Marques, and M. Concei{\c c}{\~a}o Balsinha, on behalf of the Portuguese Actifcare Workgroup (FCT—JPND-HC/0001/2012). Funding Information: Bundesministerium f{\"u}r Bildung und Forschung; Economic and Social Research Council, Grant/Award Number: ES/L008831/ 1; EU Joint Programme ‐ Neurodegenerative Disease Research (JPND), Grant/Award Number: 733051001; Forskningsr{\aa}det om H{\"a}lsa, Arbetsliv och V{\"a}lf{\"a}rd; Funda{\c c}{\~a}o para a Ci{\^e}ncia e a Tecnologia, Grant/Award Numbers: FCT‐ JPND‐HC/0001/2012 and FCT‐PD/BD/ 128011/2016, co‐funded by the European Social Fund (ESF) through the Programa Operacional Potencial Humano (POPH); Health Research Board, Grant/Award Number: JPND‐2013‐2; Ministero della Salute; The Netherlands Organization for Health Research and Development; The Research Council of Norway Publisher Copyright: {\textcopyright} 2019 John Wiley & Sons, Ltd.",
year = "2019",
month = may,
doi = "10.1002/gps.5082",
language = "English",
volume = "34",
pages = "745--755",
journal = "International Journal of Geriatric Psychiatry",
issn = "0885-6230",
publisher = "John Wiley & Sons Inc.",
number = "5",
}