Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

Jasmin B. Kuemmerle-Deschner, Sandra Hansmann, Nico M. Wulffraat, Sebastiaan J. Vastert, Kristien Hens, Jordi Anton, Tadej Avcin, Alberto Martini, Isabelle Kone-Paut, Yosef Uziel, Angelo Ravelli, Carine Wouters, David Shaw, Seza Ozen, Andreas Eikelberg, Berent J. Prakken, Nicolino Ruperto, Gerd Horneff, Tamas Constantin, Michael W. BeresfordMarijn Sikken, Helen E. Foster, Iris Haug, Sabrina Schuller, Christine Jagle, Susanne M. Benseler

Research output: Contribution to journalReview articleAcademicpeer-review

Original languageEnglish
Pages (from-to)319-327
Number of pages9
JournalAnnals of the Rheumatic Diseases
Volume77
Issue number3
DOIs
Publication statusPublished - 1 Mar 2018

Keywords

  • STANDARDIZED OPERATING PROCEDURES
  • INFORMED-CONSENT
  • GENETIC RESEARCH
  • TISSUE-BANKING
  • CHILDREN
  • ETHICS
  • HEALTH
  • PROFESSIONALS
  • GUIDELINES
  • MANAGEMENT

Cite this

Kuemmerle-Deschner, J. B., Hansmann, S., Wulffraat, N. M., Vastert, S. J., Hens, K., Anton, J., Avcin, T., Martini, A., Kone-Paut, I., Uziel, Y., Ravelli, A., Wouters, C., Shaw, D., Ozen, S., Eikelberg, A., Prakken, B. J., Ruperto, N., Horneff, G., Constantin, T., ... Benseler, S. M. (2018). Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative . Annals of the Rheumatic Diseases, 77(3), 319-327. https://doi.org/10.1136/annrheumdis-2017-211904