Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

Jasmin B. Kuemmerle-Deschner; Sandra Hansmann; Nico M. Wulffraat; Sebastiaan J. Vastert; Kristien Hens; Jordi Anton; Tadej Avcin; Alberto Martini; Isabelle Kone-Paut; Yosef Uziel; Angelo Ravelli; Carine Wouters; David Shaw; Seza Ozen; Andreas Eikelberg; Berent J. Prakken; Nicolino Ruperto; Gerd Horneff; Tamas Constantin; Michael W. Beresford; Marijn Sikken; Helen E. Foster; Iris Haug; Sabrina Schuller; Christine Jagle; Susanne M. Benseler

doi:10.1136/annrheumdis-2017-211904

Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

Jasmin B. Kuemmerle-Deschner, Sandra Hansmann, Nico M. Wulffraat, Sebastiaan J. Vastert, Kristien Hens, Jordi Anton, Tadej Avcin, Alberto Martini, Isabelle Kone-Paut, Yosef Uziel, Angelo Ravelli, Carine Wouters, David Shaw, Seza Ozen, Andreas Eikelberg, Berent J. Prakken, Nicolino Ruperto, Gerd Horneff, Tamas Constantin, Michael W. BeresfordMarijn Sikken, Helen E. Foster, Iris Haug, Sabrina Schuller, Christine Jagle, Susanne M. Benseler^*

^*Corresponding author for this work

Research output: Contribution to journal › Review article › Academic › peer-review

Original language	English
Pages (from-to)	319-327
Number of pages	9
Journal	Annals of the Rheumatic Diseases
Volume	77
Issue number	3
DOIs	https://doi.org/10.1136/annrheumdis-2017-211904
Publication status	Published - 1 Mar 2018

Keywords

STANDARDIZED OPERATING PROCEDURES
INFORMED-CONSENT
GENETIC RESEARCH
TISSUE-BANKING
CHILDREN
ETHICS
HEALTH
PROFESSIONALS
GUIDELINES
MANAGEMENT

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10.1136/annrheumdis-2017-211904

Cite this

Kuemmerle-Deschner, J. B., Hansmann, S., Wulffraat, N. M., Vastert, S. J., Hens, K., Anton, J., Avcin, T., Martini, A., Kone-Paut, I., Uziel, Y., Ravelli, A., Wouters, C., Shaw, D., Ozen, S., Eikelberg, A., Prakken, B. J., Ruperto, N., Horneff, G., Constantin, T., ... Benseler, S. M. (2018). Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative . Annals of the Rheumatic Diseases, 77(3), 319-327. https://doi.org/10.1136/annrheumdis-2017-211904

Kuemmerle-Deschner, Jasmin B. ; Hansmann, Sandra ; Wulffraat, Nico M. ; Vastert, Sebastiaan J. ; Hens, Kristien ; Anton, Jordi ; Avcin, Tadej ; Martini, Alberto ; Kone-Paut, Isabelle ; Uziel, Yosef ; Ravelli, Angelo ; Wouters, Carine ; Shaw, David ; Ozen, Seza ; Eikelberg, Andreas ; Prakken, Berent J. ; Ruperto, Nicolino ; Horneff, Gerd ; Constantin, Tamas ; Beresford, Michael W. ; Sikken, Marijn ; Foster, Helen E. ; Haug, Iris ; Schuller, Sabrina ; Jagle, Christine ; Benseler, Susanne M. / Recommendations for collaborative paediatric research including biobanking in Europe : a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative . In: Annals of the Rheumatic Diseases. 2018 ; Vol. 77, No. 3. pp. 319-327.

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title = "Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative ",

keywords = "STANDARDIZED OPERATING PROCEDURES, INFORMED-CONSENT, GENETIC RESEARCH, TISSUE-BANKING, CHILDREN, ETHICS, HEALTH, PROFESSIONALS, GUIDELINES, MANAGEMENT",

author = "Kuemmerle-Deschner, {Jasmin B.} and Sandra Hansmann and Wulffraat, {Nico M.} and Vastert, {Sebastiaan J.} and Kristien Hens and Jordi Anton and Tadej Avcin and Alberto Martini and Isabelle Kone-Paut and Yosef Uziel and Angelo Ravelli and Carine Wouters and David Shaw and Seza Ozen and Andreas Eikelberg and Prakken, {Berent J.} and Nicolino Ruperto and Gerd Horneff and Tamas Constantin and Beresford, {Michael W.} and Marijn Sikken and Foster, {Helen E.} and Iris Haug and Sabrina Schuller and Christine Jagle and Benseler, {Susanne M.}",

year = "2018",

month = mar,

day = "1",

doi = "10.1136/annrheumdis-2017-211904",

language = "English",

volume = "77",

pages = "319--327",

journal = "Annals of the Rheumatic Diseases",

issn = "0003-4967",

publisher = "BMJ Publishing Group",

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Kuemmerle-Deschner, JB, Hansmann, S, Wulffraat, NM, Vastert, SJ, Hens, K, Anton, J, Avcin, T, Martini, A, Kone-Paut, I, Uziel, Y, Ravelli, A, Wouters, C, Shaw, D, Ozen, S, Eikelberg, A, Prakken, BJ, Ruperto, N, Horneff, G, Constantin, T, Beresford, MW, Sikken, M, Foster, HE, Haug, I, Schuller, S, Jagle, C & Benseler, SM 2018, 'Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative ', Annals of the Rheumatic Diseases, vol. 77, no. 3, pp. 319-327. https://doi.org/10.1136/annrheumdis-2017-211904

Recommendations for collaborative paediatric research including biobanking in Europe : a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative . / Kuemmerle-Deschner, Jasmin B.; Hansmann, Sandra; Wulffraat, Nico M.; Vastert, Sebastiaan J.; Hens, Kristien; Anton, Jordi; Avcin, Tadej; Martini, Alberto; Kone-Paut, Isabelle; Uziel, Yosef; Ravelli, Angelo; Wouters, Carine; Shaw, David; Ozen, Seza; Eikelberg, Andreas; Prakken, Berent J.; Ruperto, Nicolino; Horneff, Gerd; Constantin, Tamas; Beresford, Michael W.; Sikken, Marijn; Foster, Helen E.; Haug, Iris; Schuller, Sabrina; Jagle, Christine; Benseler, Susanne M.

In: Annals of the Rheumatic Diseases, Vol. 77, No. 3, 01.03.2018, p. 319-327.

Research output: Contribution to journal › Review article › Academic › peer-review

TY - JOUR

T1 - Recommendations for collaborative paediatric research including biobanking in Europe

T2 - a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

AU - Kuemmerle-Deschner, Jasmin B.

AU - Hansmann, Sandra

AU - Wulffraat, Nico M.

AU - Vastert, Sebastiaan J.

AU - Hens, Kristien

AU - Anton, Jordi

AU - Avcin, Tadej

AU - Martini, Alberto

AU - Kone-Paut, Isabelle

AU - Uziel, Yosef

AU - Ravelli, Angelo

AU - Wouters, Carine

AU - Shaw, David

AU - Ozen, Seza

AU - Eikelberg, Andreas

AU - Prakken, Berent J.

AU - Ruperto, Nicolino

AU - Horneff, Gerd

AU - Constantin, Tamas

AU - Beresford, Michael W.

AU - Sikken, Marijn

AU - Foster, Helen E.

AU - Haug, Iris

AU - Schuller, Sabrina

AU - Jagle, Christine

AU - Benseler, Susanne M.

PY - 2018/3/1

Y1 - 2018/3/1

KW - STANDARDIZED OPERATING PROCEDURES

KW - INFORMED-CONSENT

KW - GENETIC RESEARCH

KW - TISSUE-BANKING

KW - CHILDREN

KW - ETHICS

KW - HEALTH

KW - PROFESSIONALS

KW - GUIDELINES

KW - MANAGEMENT

U2 - 10.1136/annrheumdis-2017-211904

DO - 10.1136/annrheumdis-2017-211904

M3 - Review article

C2 - 29021237

VL - 77

SP - 319

EP - 327

JO - Annals of the Rheumatic Diseases

JF - Annals of the Rheumatic Diseases

SN - 0003-4967

IS - 3

ER -