Psychosocial impact of Von Hippel-Lindau disease: levels and sources of distress

Chantal R. M. Lammens, Eveline M. A. Bleiker, S. Verhoef, Frederik J. Hes, M. G. E. M. Ausems, Danielle Majoor-Krakauer, Rolf H. Sijmons, Rob B. van der Luijt, Ans M. W. van den Ouweland, Theo A. Mvan Os, N. Hoogerbrugge, E. B. Gomez Garcia, C. J. Dommering, C. M. Gundy, Neil K. Aaronson*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Original languageEnglish
Pages (from-to)483-491
JournalClinical Genetics
Issue number5
Publication statusPublished - May 2010


  • distress
  • psychosocial impact
  • quality of life
  • Von Hippel
  • Lindau disease
  • worries

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