Psychosocial impact of Von Hippel-Lindau disease: levels and sources of distress

Chantal R. M. Lammens, Eveline M. A. Bleiker, S. Verhoef, Frederik J. Hes, M. G. E. M. Ausems, Danielle Majoor-Krakauer, Rolf H. Sijmons, Rob B. van der Luijt, Ans M. W. van den Ouweland, Theo A. Mvan Os, N. Hoogerbrugge, E. B. Gomez Garcia, C. J. Dommering, C. M. Gundy, Neil K. Aaronson*

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Original languageEnglish
Pages (from-to)483-491
JournalClinical Genetics
Volume77
Issue number5
DOIs
Publication statusPublished - May 2010

Keywords

  • distress
  • psychosocial impact
  • quality of life
  • Von Hippel
  • Lindau disease
  • worries

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