TY - JOUR
T1 - Proposal for a Framework to Enable Elicitation of Preferences for Clients in Need of Long-Term Care
AU - van Leersum, Catharina M.
AU - Steenkiste, Ben van
AU - Moser, Albine
AU - Wolf, Judith R. L. M.
AU - van der Weijden, Trudy
N1 - Funding Information:
TvdW received a fund from ZonMw, The Hague, The Netherlands (516012502). The funders had no role in the study design, data collection, and analysis, decision to publish, or preparation of the manuscript. The authors wish to thank all participants for their contribution to this research. The authors thank Renee de Vet (RdV), Tessa van Loenen (TvL), Marjan Faber (MF), and Miriam Harmsen (MH), employees of Radboud University Medical Center, IQ Healthcare, Impuls, Nijmegen, The Netherlands, for their contribution to the data collection. The authors also thank Silvia Bours as a research assistant of University Maastricht for her contribution during the data analysis.
Publisher Copyright:
© 2020 van Leersum et al.
PY - 2020/8/25
Y1 - 2020/8/25
N2 - Purpose: Collaborative deliberation comprises personal engagement, recognition of alternative actions, comparative learning, preference elicitation, and preference integration. Collaborative deliberation may be improved by assisting preference elicitation during shared decision-making. This study proposes a framework for preference elicitation to facilitate collaborative deliberation in long-term care consultations.Methods: First, a literature overview was conducted comprising current models for the elicitation of preferences in health and social care settings. The models were reviewed and compared. Second, qualitative research was applied to explore those issues that matter most to clients in long-term care. Data were collected from clients in long-term care, comprising 16 interviews, 3 focus groups, 79 client records, and 200 online client reports. The qualitative analysis followed a deductive approach. The results of the literature overview and qualitative research were combined.Results: Based on the literature overview, five overarching domains of preferences were described: "Health", "Daily life", "Family and friends", "Living conditions", and "Finances". The credibility of these domains was confirmed by qualitative data analysis. During interviews, clients addressed issues that matter in their lives, including a "click" with their care professional, safety, contact with loved ones, and assistance with daily structure and activities. These data were used to determine the content of the domains.Conclusion: A framework for preference elicitation in long-term care is proposed. This framework could be useful for clients and professionals in preference elicitation during collaborative deliberation.
AB - Purpose: Collaborative deliberation comprises personal engagement, recognition of alternative actions, comparative learning, preference elicitation, and preference integration. Collaborative deliberation may be improved by assisting preference elicitation during shared decision-making. This study proposes a framework for preference elicitation to facilitate collaborative deliberation in long-term care consultations.Methods: First, a literature overview was conducted comprising current models for the elicitation of preferences in health and social care settings. The models were reviewed and compared. Second, qualitative research was applied to explore those issues that matter most to clients in long-term care. Data were collected from clients in long-term care, comprising 16 interviews, 3 focus groups, 79 client records, and 200 online client reports. The qualitative analysis followed a deductive approach. The results of the literature overview and qualitative research were combined.Results: Based on the literature overview, five overarching domains of preferences were described: "Health", "Daily life", "Family and friends", "Living conditions", and "Finances". The credibility of these domains was confirmed by qualitative data analysis. During interviews, clients addressed issues that matter in their lives, including a "click" with their care professional, safety, contact with loved ones, and assistance with daily structure and activities. These data were used to determine the content of the domains.Conclusion: A framework for preference elicitation in long-term care is proposed. This framework could be useful for clients and professionals in preference elicitation during collaborative deliberation.
KW - preference elicitation
KW - long-term care
KW - patient preferences
KW - collaborative deliberation
KW - decision support
KW - SHARED DECISION-MAKING
KW - HEALTH-CARE
KW - PROSTATE-CANCER
KW - DELIBERATION
KW - SERVICES
KW - SUPPORT
KW - MODEL
U2 - 10.2147/PPA.S257501
DO - 10.2147/PPA.S257501
M3 - Article
C2 - 32904562
SN - 1177-889X
VL - 14
SP - 1553
EP - 1566
JO - Patient Preference and Adherence
JF - Patient Preference and Adherence
ER -