Prenatal counseling in extreme prematurity - Insight into preferences from experienced parents

Rosa Geurtzen*, Arno van Heijst, Jos Draaisma, Laura Ouwerkerk, Hubertina Scheepers, Marije Hogeveen, Rosetta Hermens

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

12 Citations (Web of Science)

Abstract

Objective: In-depth analysis of parental preferences in prenatal counseling in extreme prematurity.

Methods: A nationwide qualitative interview study among experienced parents of extremely premature babies born at 24(+0/7) - 24(+6/7) weeks of gestation. Semi-structured interviews were held until saturation, transcribed and qualitatively analyzed to search for parental counseling preferences.

Results: Thirteen parents were included, most parents decided on active care. Organisation: Parents wanted counseling as soon as possible, and for various reasons they wanted more than one conversation. Supportive material to help visualize complex information was suggested to be helpful, preferably with adjustable levels of detail. An empathetic, honest style with commitment of the counselor was regarded important. Content: Understandable statistics should be used for those who want it. Parents needed different information with respect to the decision-making as opposed to being prepared for future situations. Decision-making: The preferred share of parents' and doctors' input in decision-making varied among parents and among situations. Parents expressed that their roles were to take responsibility for and protect their infant.

Conclusions: Various parental preferences for prenatal counseling were found.

Practice implications: Common parental preferences for the organisation, content and decision-making elements can provide a starting point for personalized prenatal counseling.
Original languageEnglish
Pages (from-to)1541-1549
Number of pages9
JournalPatient Education and Counseling
Volume102
Issue number8
DOIs
Publication statusPublished - Aug 2019

Keywords

  • (Prenatal) counseling
  • Decision-making
  • (Extreme) prematurity
  • Ethics
  • (Limits of) viability
  • Neonatal intensive care
  • SHARED DECISION-MAKING
  • HIGH-RISK
  • CARE
  • RESUSCITATION
  • PERCEPTIONS
  • VIABILITY
  • PROFESSIONALS
  • GUIDELINES
  • MANAGEMENT
  • INFANTS

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