Abstract
Purpose of review Sarcoidosis is associated with an increasing global burden, driven by rising prevalence, severe organ involvement, treatment-related morbidity, and substantial impairment in quality of life (QoL). Despite advances in diagnostics and therapeutics, important barriers continue to limit timely, equitable, and patient-centered care. This review highlights three common challenges in sarcoidosis management and outlines pragmatic approaches to address them, using a patient-centered framework that emphasizes whether patients feel better, function better, and are able to thrive.Recent findings Recent evidence confirms persistent delays in diagnosis, limited access to sarcoidosis expertise, and inequities in referral to specialized care. Growing data indicates that chronic glucocorticoid use contributes substantially to long-term morbidity, supporting glucocorticoid stewardship and earlier use of steroid-sparing therapies. In parallel, patient-reported manifestations, such as fatigue, cognitive dysfunction, dysautonomia, and small fiber neuropathy-related symptoms, are increasingly recognized as major determinants of functional impairment and health-related QoL inadequately captured by traditional objective disease markers. Recent expert recommendations emphasize practical, implementable strategies applicable across both specialist and nonspecialist settings.Summary Improving sarcoidosis care requires a pragmatic, holistic approach that prioritizes timely diagnosis, equitable access to expertise, minimization of glucocorticoid-related harm, and systematic assessment of patient-reported outcomes. Collectively, these strategies support a patient-centered framework that evaluates treatment success not only by disease control but also by whether patients feel better, function better, and are able to thrive in the context of optimal health, meaningful social connection and contribution. This approach aligns care with patient priorities and supports individualized, shared decision-making.
| Original language | English |
|---|---|
| Pages (from-to) | 500-507 |
| Number of pages | 8 |
| Journal | Current Opinion in Pulmonary Medicine |
| Volume | 32 |
| Issue number | 5 |
| DOIs | |
| Publication status | Published - 1 Sept 2026 |
Keywords
- glucocorticoids
- multidisciplinary care
- patient-reported outcomes
- quality of life
- sarcoidosis
- shared decision-making
- ADRENAL-FUNCTION
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