Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO)

Maarten de Wit; Cyrus Cooper; Peter Tugwell; Nathalie Bere; John Kirwan; Philip G. Conaghan; Charlotte Roberts; Isabelle Aujoulat; Nasser Al-Daghri; Islene Araujo de Carvalho; Mary Barker; Nicola Bedlington; Maria Luisa Brandi; Olivier Bruyere; Nansa Burlet; Philippe Halbout; Mickael Hiligsmann; Famida Jiwa; John A. Kanis; Andrea Laslop; Wendy Lawrence; Daniel Pinto; Concepcin Prieto Yerro; Veronique Rabenda; Ren Rizzoli; Marieke Scholte-Voshaar; Mila Vlaskovska; Jean-Yves Reginster

doi:10.1007/s40520-019-01193-8

Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO)

Maarten de Wit, Cyrus Cooper, Peter Tugwell, Nathalie Bere, John Kirwan, Philip G. Conaghan, Charlotte Roberts, Isabelle Aujoulat, Nasser Al-Daghri, Islene Araujo de Carvalho, Mary Barker, Nicola Bedlington, Maria Luisa Brandi, Olivier Bruyere, Nansa Burlet, Philippe Halbout, Mickael Hiligsmann, Famida Jiwa, John A. Kanis, Andrea LaslopWendy Lawrence, Daniel Pinto, Concepcin Prieto Yerro, Veronique Rabenda, Ren Rizzoli, Marieke Scholte-Voshaar, Mila Vlaskovska, Jean-Yves Reginster^*

^*Corresponding author for this work

Research output: Contribution to journal › Review article › Academic › peer-review

25 Citations (Web of Science)

Original language	English
Pages (from-to)	905-915
Number of pages	11
Journal	Aging Clinical and Experimental Research
Volume	31
Issue number	7
DOIs	https://doi.org/10.1007/s40520-019-01193-8
Publication status	Published - Jul 2019

Keywords

Outcomes research
Patient engagement
Patient preference
Regulatory process
Treatment guidelines
DISCRETE-CHOICE EXPERIMENT
PUBLIC INVOLVEMENT
DRUG DEVELOPMENT
CORE SET
PREFERENCES
ENGAGEMENT
PARTNERS

Access to Document

10.1007/s40520-019-01193-8

Cite this

de Wit, M., Cooper, C., Tugwell, P., Bere, N., Kirwan, J., Conaghan, P. G., Roberts, C., Aujoulat, I., Al-Daghri, N., de Carvalho, I. A., Barker, M., Bedlington, N., Brandi, M. L., Bruyere, O., Burlet, N., Halbout, P., Hiligsmann, M., Jiwa, F., Kanis, J. A., ... Reginster, J-Y. (2019). Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO). Aging Clinical and Experimental Research, 31(7), 905-915. https://doi.org/10.1007/s40520-019-01193-8

de Wit, Maarten ; Cooper, Cyrus ; Tugwell, Peter ; Bere, Nathalie ; Kirwan, John ; Conaghan, Philip G. ; Roberts, Charlotte ; Aujoulat, Isabelle ; Al-Daghri, Nasser ; de Carvalho, Islene Araujo ; Barker, Mary ; Bedlington, Nicola ; Brandi, Maria Luisa ; Bruyere, Olivier ; Burlet, Nansa ; Halbout, Philippe ; Hiligsmann, Mickael ; Jiwa, Famida ; Kanis, John A. ; Laslop, Andrea ; Lawrence, Wendy ; Pinto, Daniel ; Prieto Yerro, Concepcin ; Rabenda, Veronique ; Rizzoli, Ren ; Scholte-Voshaar, Marieke ; Vlaskovska, Mila ; Reginster, Jean-Yves. / Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes : results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO). In: Aging Clinical and Experimental Research. 2019 ; Vol. 31, No. 7. pp. 905-915.

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title = "Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO)",

keywords = "Outcomes research, Patient engagement, Patient preference, Regulatory process, Treatment guidelines, DISCRETE-CHOICE EXPERIMENT, PUBLIC INVOLVEMENT, DRUG DEVELOPMENT, CORE SET, PREFERENCES, ENGAGEMENT, PARTNERS",

author = "{de Wit}, Maarten and Cyrus Cooper and Peter Tugwell and Nathalie Bere and John Kirwan and Conaghan, {Philip G.} and Charlotte Roberts and Isabelle Aujoulat and Nasser Al-Daghri and {de Carvalho}, {Islene Araujo} and Mary Barker and Nicola Bedlington and Brandi, {Maria Luisa} and Olivier Bruyere and Nansa Burlet and Philippe Halbout and Mickael Hiligsmann and Famida Jiwa and Kanis, {John A.} and Andrea Laslop and Wendy Lawrence and Daniel Pinto and {Prieto Yerro}, Concepcin and Veronique Rabenda and Ren Rizzoli and Marieke Scholte-Voshaar and Mila Vlaskovska and Jean-Yves Reginster",

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language = "English",

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de Wit, M, Cooper, C, Tugwell, P, Bere, N, Kirwan, J, Conaghan, PG, Roberts, C, Aujoulat, I, Al-Daghri, N, de Carvalho, IA, Barker, M, Bedlington, N, Brandi, ML, Bruyere, O, Burlet, N, Halbout, P, Hiligsmann, M, Jiwa, F, Kanis, JA, Laslop, A, Lawrence, W, Pinto, D, Prieto Yerro, C, Rabenda, V, Rizzoli, R, Scholte-Voshaar, M, Vlaskovska, M & Reginster, J-Y 2019, 'Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO)', Aging Clinical and Experimental Research, vol. 31, no. 7, pp. 905-915. https://doi.org/10.1007/s40520-019-01193-8

Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes : results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO). / de Wit, Maarten; Cooper, Cyrus; Tugwell, Peter; Bere, Nathalie; Kirwan, John; Conaghan, Philip G.; Roberts, Charlotte; Aujoulat, Isabelle; Al-Daghri, Nasser; de Carvalho, Islene Araujo; Barker, Mary; Bedlington, Nicola; Brandi, Maria Luisa; Bruyere, Olivier; Burlet, Nansa; Halbout, Philippe; Hiligsmann, Mickael; Jiwa, Famida; Kanis, John A.; Laslop, Andrea; Lawrence, Wendy; Pinto, Daniel; Prieto Yerro, Concepcin; Rabenda, Veronique; Rizzoli, Ren; Scholte-Voshaar, Marieke; Vlaskovska, Mila; Reginster, Jean-Yves.

In: Aging Clinical and Experimental Research, Vol. 31, No. 7, 07.2019, p. 905-915.

Research output: Contribution to journal › Review article › Academic › peer-review

TY - JOUR

T1 - Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes

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AU - de Wit, Maarten

AU - Cooper, Cyrus

AU - Tugwell, Peter

AU - Bere, Nathalie

AU - Kirwan, John

AU - Conaghan, Philip G.

AU - Roberts, Charlotte

AU - Aujoulat, Isabelle

AU - Al-Daghri, Nasser

AU - de Carvalho, Islene Araujo

AU - Barker, Mary

AU - Bedlington, Nicola

AU - Brandi, Maria Luisa

AU - Bruyere, Olivier

AU - Burlet, Nansa

AU - Halbout, Philippe

AU - Hiligsmann, Mickael

AU - Jiwa, Famida

AU - Kanis, John A.

AU - Laslop, Andrea

AU - Lawrence, Wendy

AU - Pinto, Daniel

AU - Prieto Yerro, Concepcin

AU - Rabenda, Veronique

AU - Rizzoli, Ren

AU - Scholte-Voshaar, Marieke

AU - Vlaskovska, Mila

AU - Reginster, Jean-Yves

PY - 2019/7

Y1 - 2019/7

KW - Outcomes research

KW - Patient engagement

KW - Patient preference

KW - Regulatory process

KW - Treatment guidelines

KW - DISCRETE-CHOICE EXPERIMENT

KW - PUBLIC INVOLVEMENT

KW - DRUG DEVELOPMENT

KW - CORE SET

KW - PREFERENCES

KW - ENGAGEMENT

KW - PARTNERS

U2 - 10.1007/s40520-019-01193-8

DO - 10.1007/s40520-019-01193-8

M3 - Review article

C2 - 30993659

VL - 31

SP - 905

EP - 915

JO - Aging Clinical and Experimental Research

JF - Aging Clinical and Experimental Research

SN - 1594-0667

IS - 7

ER -

de Wit M, Cooper C, Tugwell P, Bere N, Kirwan J, Conaghan PG et al. Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO). Aging Clinical and Experimental Research. 2019 Jul;31(7):905-915. https://doi.org/10.1007/s40520-019-01193-8