Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks

Carla E. M. Hollak*, Marieke Biegstraaten, Matthias R. Baumgartner, Nadia Belmatoug, Bruno Bembi, Annet Bosch, Martijn Brouwers, Hanka Dekker, Dries Dobbelaere, Marc Engelen, Marike C. Groenendijk, Robin Lachmann, Janneke G. Langendonk, Mirjam Langeveld, Gabor Linthorst, Eva Morava, Bwee Tien Poll-The, Shamima Rahman, Estela Rubio Gozalbo, Ute SpiekerkoetterEileen Treacy, Ronald Wanders, Johannes Zschocke, Rob Hagendijk

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Original languageEnglish
Article number7
JournalOrphanet Journal of Rare Diseases
Volume11
DOIs
Publication statusPublished - 25 Jan 2016

Keywords

  • European Reference Network
  • Rare diseases
  • Orphan diseases
  • Industry
  • Conflict of interest

Cite this