Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries

Anja Broda*, Anja Bieber, Gabriele Meyer, Louise Hopper, Rachael Joyce, Kate Irving, Orazio Zanetti, Elisa Portolani, Liselot Kerpershoek, Frans Verhey, Marjolein de Vugt, Claire Wolfs, Siren Eriksen, Janne Rosvik, Maria J. Marques, Manuel Goncalves-Pereira, Britt-Marie Sjolund, Bob Woods, Hannah Jelley, Martin OrrellAstrid Stephan, ActifCare Consortium

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

18 Citations (Web of Science)

Abstract

Background: As part of the ActifCare (ACcess to Timely Formal Care) project, we conducted expert interviews in eight European countries with policy and political decision makers, or representatives of relevant institutions, to determine their perspectives on access to formal care for people with dementia and their carers.

Methods: Each ActifCare country (Germany, Ireland, Italy, The Netherlands, Norway, Portugal, Sweden, United Kingdom) conducted semi-structured interviews with 4-7 experts (total N = 38). The interview guide addressed the topics "Complexity and Continuity of Care", "Formal Services", and "Public Awareness". Country-specific analysis of interview transcripts used an inductive qualitative content analysis. Cross-national synthesis focused on similarities in themes across the ActifCare countries.

Results: The analysis revealed ten common themes and two additional sub-themes across countries. Among others, the experts highlighted the need for a coordinating role and the necessity of information to address issues of complexity and continuity of care, demanded person-centred, tailored, and multidisciplinary formal services, and referred to education, mass media and campaigns as means to raise public awareness.

Conclusions: Policy and political decision makers appear well acquainted with current discussions among both researchers and practitioners of possible approaches to improve access to dementia care. Experts described pragmatic, realistic strategies to influence dementia care. Suggested innovations concerned how to achieve improved dementia care, rather than transforming the nature of the services provided. Knowledge gained in these expert interviews may be useful to national decision makers when they consider reshaping the organisation of dementia care, and may thus help to develop best-practice strategies and recommendations.

Original languageEnglish
Article number518
Number of pages14
JournalBMC Health Services Research
Volume17
DOIs
Publication statusPublished - 3 Aug 2017

Keywords

  • Dementia
  • Access to formal dementia care
  • Expert interviews
  • QUALITATIVE RESEARCH
  • HEALTH-CARE
  • PEOPLE
  • CAREGIVERS
  • KNOWLEDGE
  • EXPERIENCES
  • INFORMATION
  • MANAGEMENT
  • SERVICES
  • SUPPORT

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