Patient-reported outcome measures (PROMs): making sense of individual PROM scores and changes in PROM scores over time

Esmee M. van der Willik; Caroline B. Terwee; Willem Jan W. Bos; Marc H. Hemmelder; Kitty J. Jager; Carmine Zoccali; Friedo W. Dekker; Yvette Meuleman

doi:10.1111/nep.13843

Patient-reported outcome measures (PROMs): making sense of individual PROM scores and changes in PROM scores over time

Esmee M. van der Willik^*, Caroline B. Terwee, Willem Jan W. Bos, Marc H. Hemmelder, Kitty J. Jager, Carmine Zoccali, Friedo W. Dekker, Yvette Meuleman

^*Corresponding author for this work

Research output: Contribution to journal › (Systematic) Review article › peer-review

Abstract

Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care.

Original language	English
Pages (from-to)	391-399
Number of pages	9
Journal	Nephrology
Volume	26
Issue number	5
Early online date	25 Dec 2020
DOIs	https://doi.org/10.1111/nep.13843
Publication status	Published - May 2021

Keywords

data interpretations
minimal clinically important difference
patient&#8208
reported outcome measures
psychometrics
quality of life
QUALITY-OF-LIFE
CHRONIC KIDNEY-DISEASE
RESPONSE SHIFT
SYMPTOM ASSESSMENT
HEALTH SURVEY

Access to Document

10.1111/nep.13843Licence: CC BY-NC

Cite this

@article{253941a5c5264251b3cb63fcb7fd21f4,

title = "Patient-reported outcome measures (PROMs): making sense of individual PROM scores and changes in PROM scores over time",

abstract = "Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care.",

keywords = "data interpretations, minimal clinically important difference, patient&#8208, reported outcome measures, psychometrics, quality of life, QUALITY-OF-LIFE, CHRONIC KIDNEY-DISEASE, RESPONSE SHIFT, SYMPTOM ASSESSMENT, HEALTH SURVEY",

author = "{van der Willik}, {Esmee M.} and Terwee, {Caroline B.} and Bos, {Willem Jan W.} and Hemmelder, {Marc H.} and Jager, {Kitty J.} and Carmine Zoccali and Dekker, {Friedo W.} and Yvette Meuleman",

note = "Publisher Copyright: {\textcopyright} 2020 The Authors. Nephrology published by John Wiley & Sons Australia, Ltd on behalf of Asian Pacific Society of Nephrology.",

year = "2021",

month = may,

doi = "10.1111/nep.13843",

language = "English",

volume = "26",

pages = "391--399",

journal = "Nephrology",

issn = "1320-5358",

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T2 - making sense of individual PROM scores and changes in PROM scores over time

AU - van der Willik, Esmee M.

AU - Terwee, Caroline B.

AU - Bos, Willem Jan W.

AU - Hemmelder, Marc H.

AU - Jager, Kitty J.

AU - Zoccali, Carmine

AU - Dekker, Friedo W.

AU - Meuleman, Yvette

PY - 2021/5

Y1 - 2021/5

N2 - Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care.

AB - Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care.

KW - data interpretations

KW - minimal clinically important difference

KW - patient&#8208

KW - reported outcome measures

KW - psychometrics

KW - quality of life

KW - QUALITY-OF-LIFE

KW - CHRONIC KIDNEY-DISEASE

KW - RESPONSE SHIFT

KW - SYMPTOM ASSESSMENT

KW - HEALTH SURVEY

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DO - 10.1111/nep.13843

M3 - (Systematic) Review article

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SN - 1320-5358

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