Patient-clinician communication about end-of-life care for Dutch and US patients with COPD

D.J. Janssen, J.R. Curtis, D.H. Au, M.A. Spruit, L. Downey, J.M.G.A. Schols, E.F.M. Wouters, R.A. Engelberg

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Improving patient-clinician communication about end-of-life care is important in order to enhance quality of care for patients with chronic obstructive pulmonary disease (COPD). Our objective was to compare quality of patient-clinician communication about end-of-life care, and endorsement of barriers and facilitators to this communication in the Netherlands and the USA.

The present study was an analysis of survey data from 122 Dutch and 391 US outpatients with COPD. We compared quality of patient-clinician communication about end-of-life care (Quality of Communication questionnaire) and barriers and facilitators to communication about end-of-life care (Barriers and Facilitators Questionnaire) between the Netherlands and the USA, controlling for patients' demographic and illness characteristics.

Although Dutch patients in this study had worse lung function and disease-specific health status than US patients, Dutch patients reported lower quality of communication about end-of-life care (median score 0.0 (interquartile range 0.0-2.0) versus 1.4 (0.0-3.6); adjusted p <0.005). Clinicians in both countries rarely discussed life-sustaining treatment preferences, prognoses, dying processes or spiritual issues.

Quality of communication about end-of-life care needs to improve in the Netherlands and the USA. Future studies to improve this communication should be designed to take into account international differences and patient-specific barriers and facilitators to communication about end-of-life care.

Original languageEnglish
Pages (from-to)268-276
Number of pages9
JournalEuropean Respiratory Journal
Volume38
Issue number2
DOIs
Publication statusPublished - Aug 2011

Keywords

  • Advance care planning
  • chronic obstructive pulmonary disease
  • communication
  • end-of-life care
  • palliative care
  • OBSTRUCTIVE PULMONARY-DISEASE
  • CRITICALLY-ILL PATIENTS
  • QUALITY
  • HEALTH
  • ASSOCIATIONS
  • DISCUSSIONS
  • QUESTIONNAIRE
  • PERSPECTIVE
  • CANCER
  • DEATH

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