Participation restrictions and satisfaction with participation in partners of patients with stroke

Vincent Cox, Vera Schepers*, Marjolijn Ketelaar, Caroline van Heugten

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

4 Citations (Web of Science)

Abstract

Objective: To investigate participation restrictions and satisfaction with participation in partners of patients with stroke.

Design: Cross-sectional study.

Setting : Five rehabilitation centers and 3 hospitals in The Netherlands.

Participants: A consecutive sample of 54 partners of patients with stroke. The patients were participating in a multicenter randomized controlled trial.

Interventions: Not applicable.

Main Outcome Measures: Participation restrictions as a result of the patient's stroke and satisfaction with participation measured with the Utrecht Scale for Evaluation of Rehabilitation-Participation.

Results: The number of participation restrictions differed between partners of patients with stroke. The median number of participation restrictions experienced was 2 for the 11 activities assessed. Most participation restrictions were reported regarding paid work, unpaid work, or education, relationship with partner (ie, patient), and going out. Partners were least satisfied regarding going out, sports or other physical exercise, and day trips and other outdoor activities. The participation restrictions and satisfaction with participation were significantly correlated (p =0.65; P

Conclusions: There is great variety in restrictions experienced by partners regarding different activities and in their satisfaction with these activities. Specific assessment is therefore important when supporting partners of patients with stroke. (C) 2019 by the American Congress of Rehabilitation Medicine. Published by Elsevier Inc.

Original languageEnglish
Pages (from-to)464-471
Number of pages8
JournalArchives of Physical Medicine and Rehabilitation
Volume101
Issue number3
Early online date24 Oct 2019
DOIs
Publication statusPublished - Mar 2020

Keywords

  • Caregivers
  • Community participation
  • Rehabilitation
  • Social participation
  • Spouses
  • Stroke
  • MONTREAL COGNITIVE ASSESSMENT
  • LIFE SATISFACTION
  • HOSPITAL ANXIETY
  • UTRECHT SCALE
  • CAREGIVERS
  • DEPRESSION
  • REHABILITATION
  • SPOUSES
  • VALIDITY

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