Participation restrictions and satisfaction with participation in partners of patients with stroke

Vincent Cox, Vera Schepers, Marjolijn Ketelaar, Caroline van Heugten

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

OBJECTIVE: To investigate participation restrictions and satisfaction with participation in partners of patients with stroke.

DESIGN: Cross-sectional study.

SETTING: Five rehabilitation centers and three hospitals in [country censored for review process].

PARTICIPANTS: A consecutive sample of 54 partners of patients with stroke. The patients were participating in a multi-center randomized controlled trial.

INTERVENTIONS: Not applicable.

MAIN OUTCOME MEASURE(S): Participation restrictions as a result of the patient's stroke and satisfaction with participation measured with the Utrecht Scale for Evaluation of Rehabilitation - Participation (USER-P).

RESULTS: The number of participation restrictions differed between partners of patients with stroke. The median number of participation restrictions experienced was 2 for the 11 activities assessed. Most participation restrictions were reported regarding paid work, unpaid work, or education, relationship with partner (i.e. patient) and going out. Partners were least satisfied regarding going out, sports or other physical exercise, and day trips and other outdoor activities. The participation restrictions and satisfaction with participation were significantly correlated (rs = 0.65; p < .001), though this relation between participation restrictions and satisfaction with participation differed for the various activities. Differences between satisfied partners with participation restrictions and dissatisfied partners concerned anxiety (U = 93.0, p = .026), depression (U = 81.5, p = .010), and the number of restrictions experienced (U = 50.0, p < .001).

CONCLUSIONS: There is great variety in restrictions experienced by partners regarding different activities, and in their satisfaction with these activities. Specific assessment is therefore important when supporting partners of patients with stroke.

Original languageEnglish
JournalArchives of Physical Medicine and Rehabilitation
DOIs
Publication statusE-pub ahead of print - 24 Oct 2019

Cite this

@article{da1bc4d8c6c04b71865eef5071545069,
title = "Participation restrictions and satisfaction with participation in partners of patients with stroke",
abstract = "OBJECTIVE: To investigate participation restrictions and satisfaction with participation in partners of patients with stroke.DESIGN: Cross-sectional study.SETTING: Five rehabilitation centers and three hospitals in [country censored for review process].PARTICIPANTS: A consecutive sample of 54 partners of patients with stroke. The patients were participating in a multi-center randomized controlled trial.INTERVENTIONS: Not applicable.MAIN OUTCOME MEASURE(S): Participation restrictions as a result of the patient's stroke and satisfaction with participation measured with the Utrecht Scale for Evaluation of Rehabilitation - Participation (USER-P).RESULTS: The number of participation restrictions differed between partners of patients with stroke. The median number of participation restrictions experienced was 2 for the 11 activities assessed. Most participation restrictions were reported regarding paid work, unpaid work, or education, relationship with partner (i.e. patient) and going out. Partners were least satisfied regarding going out, sports or other physical exercise, and day trips and other outdoor activities. The participation restrictions and satisfaction with participation were significantly correlated (rs = 0.65; p < .001), though this relation between participation restrictions and satisfaction with participation differed for the various activities. Differences between satisfied partners with participation restrictions and dissatisfied partners concerned anxiety (U = 93.0, p = .026), depression (U = 81.5, p = .010), and the number of restrictions experienced (U = 50.0, p < .001).CONCLUSIONS: There is great variety in restrictions experienced by partners regarding different activities, and in their satisfaction with these activities. Specific assessment is therefore important when supporting partners of patients with stroke.",
author = "Vincent Cox and Vera Schepers and Marjolijn Ketelaar and {van Heugten}, Caroline",
note = "Copyright {\circledC} 2019. Published by Elsevier Inc.",
year = "2019",
month = "10",
day = "24",
doi = "10.1016/j.apmr.2019.09.012",
language = "English",
journal = "Archives of Physical Medicine and Rehabilitation",
issn = "0003-9993",
publisher = "W B Saunders Co-Elsevier Inc",

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Participation restrictions and satisfaction with participation in partners of patients with stroke. / Cox, Vincent; Schepers, Vera; Ketelaar, Marjolijn; van Heugten, Caroline.

In: Archives of Physical Medicine and Rehabilitation, 24.10.2019.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Participation restrictions and satisfaction with participation in partners of patients with stroke

AU - Cox, Vincent

AU - Schepers, Vera

AU - Ketelaar, Marjolijn

AU - van Heugten, Caroline

N1 - Copyright © 2019. Published by Elsevier Inc.

PY - 2019/10/24

Y1 - 2019/10/24

N2 - OBJECTIVE: To investigate participation restrictions and satisfaction with participation in partners of patients with stroke.DESIGN: Cross-sectional study.SETTING: Five rehabilitation centers and three hospitals in [country censored for review process].PARTICIPANTS: A consecutive sample of 54 partners of patients with stroke. The patients were participating in a multi-center randomized controlled trial.INTERVENTIONS: Not applicable.MAIN OUTCOME MEASURE(S): Participation restrictions as a result of the patient's stroke and satisfaction with participation measured with the Utrecht Scale for Evaluation of Rehabilitation - Participation (USER-P).RESULTS: The number of participation restrictions differed between partners of patients with stroke. The median number of participation restrictions experienced was 2 for the 11 activities assessed. Most participation restrictions were reported regarding paid work, unpaid work, or education, relationship with partner (i.e. patient) and going out. Partners were least satisfied regarding going out, sports or other physical exercise, and day trips and other outdoor activities. The participation restrictions and satisfaction with participation were significantly correlated (rs = 0.65; p < .001), though this relation between participation restrictions and satisfaction with participation differed for the various activities. Differences between satisfied partners with participation restrictions and dissatisfied partners concerned anxiety (U = 93.0, p = .026), depression (U = 81.5, p = .010), and the number of restrictions experienced (U = 50.0, p < .001).CONCLUSIONS: There is great variety in restrictions experienced by partners regarding different activities, and in their satisfaction with these activities. Specific assessment is therefore important when supporting partners of patients with stroke.

AB - OBJECTIVE: To investigate participation restrictions and satisfaction with participation in partners of patients with stroke.DESIGN: Cross-sectional study.SETTING: Five rehabilitation centers and three hospitals in [country censored for review process].PARTICIPANTS: A consecutive sample of 54 partners of patients with stroke. The patients were participating in a multi-center randomized controlled trial.INTERVENTIONS: Not applicable.MAIN OUTCOME MEASURE(S): Participation restrictions as a result of the patient's stroke and satisfaction with participation measured with the Utrecht Scale for Evaluation of Rehabilitation - Participation (USER-P).RESULTS: The number of participation restrictions differed between partners of patients with stroke. The median number of participation restrictions experienced was 2 for the 11 activities assessed. Most participation restrictions were reported regarding paid work, unpaid work, or education, relationship with partner (i.e. patient) and going out. Partners were least satisfied regarding going out, sports or other physical exercise, and day trips and other outdoor activities. The participation restrictions and satisfaction with participation were significantly correlated (rs = 0.65; p < .001), though this relation between participation restrictions and satisfaction with participation differed for the various activities. Differences between satisfied partners with participation restrictions and dissatisfied partners concerned anxiety (U = 93.0, p = .026), depression (U = 81.5, p = .010), and the number of restrictions experienced (U = 50.0, p < .001).CONCLUSIONS: There is great variety in restrictions experienced by partners regarding different activities, and in their satisfaction with these activities. Specific assessment is therefore important when supporting partners of patients with stroke.

U2 - 10.1016/j.apmr.2019.09.012

DO - 10.1016/j.apmr.2019.09.012

M3 - Article

C2 - 31669298

JO - Archives of Physical Medicine and Rehabilitation

JF - Archives of Physical Medicine and Rehabilitation

SN - 0003-9993

ER -