TY - JOUR
T1 - Necessidades de Cuidados e Recurso aos Serviços na Demência: Avaliação Inicial da Coorte Portuguesa no Estudo Actifcare
AU - Goncalves-Pereira, Manuel
AU - Marques, Maria J.
AU - Balsinha, Conceicao
AU - Fernandes, Alexandra
AU - Machado, Ana Sa
AU - Verdelho, Ana
AU - Barahona-Correa, Bernardo
AU - Barrios, Helena
AU - Guimaraes, Joao
AU - Grave, Joana
AU - Alves, Luisa
AU - de Almeida, Manuel Caldas
AU - Reis, Teresa
AU - Orrell, Martin
AU - Woods, Bob
AU - De Vugt, Marjolein
AU - Verhey, Frans
AU - Wolfs, Claire
AU - Handels, Ron
AU - Kerpershoek, Liselot
AU - Meyer, Gabriele
AU - Stephan, Astrid
AU - Bieber, Anja
AU - Broda, Anja
AU - Bartoszek, Gabriele
AU - Jelley, Hannah
AU - Wimo, Anders
AU - Skoldunger, Anders
AU - Sjolund, Britt-Marie
AU - Engedal, Knut
AU - Selbaek, Geir
AU - Michalet, Mona
AU - Rosvik, Janne
AU - Eriksen, Siren
AU - Irving, Kate
AU - Hopper, Louise
AU - Joyce, Rachael
AU - Zanetti, Orazio
AU - Portolani, Elisa
AU - ActifCare Consortium
PY - 2019/5
Y1 - 2019/5
N2 - Introduction: People with dementia and their relatives should have timely access to formal care in the community. The EU-Actifcare project analysed access to and use of formal services, as related to unmet needs for care. We describe the cohort study implementation and baseline results in Portugal, with a focus on needs for care and service use assessments.Material and Methods: Our convenience sample consisted of 66 dyads of community-dwelling people with mild to moderate dementia and no significant use of formal services, and their informal carers. Measures included the Camberwell Assessment of Need for the Elderly and Resources Utilization in Dementia.Results: People with dementia had unmet needs (mean 1.1; SD 1.7), mainly regarding company (23%), psychological distress (20%), and daily activities (14%). Family caregivers spent 150 minutes/day (median) providing support, and 44% had psychological distress unmet needs. Problems with access to or use of formal services, when present, were frequently due to attitudes or lack of knowledge of any or both members of the dyad.Discussion: The recruitment process was challenging, since the inclusion criteria were restrictive. Not claiming generalizability, we recruited a typical sample of Portuguese people with mild to moderate dementia and no significant formal community support. Levels and type of unmet needs found in some participants would call for formal support, were it not for problems regarding access or use.Conclusion: There are difficulties regarding timely access and effective use of formal care in dementia, along with relevant unmet needs.
AB - Introduction: People with dementia and their relatives should have timely access to formal care in the community. The EU-Actifcare project analysed access to and use of formal services, as related to unmet needs for care. We describe the cohort study implementation and baseline results in Portugal, with a focus on needs for care and service use assessments.Material and Methods: Our convenience sample consisted of 66 dyads of community-dwelling people with mild to moderate dementia and no significant use of formal services, and their informal carers. Measures included the Camberwell Assessment of Need for the Elderly and Resources Utilization in Dementia.Results: People with dementia had unmet needs (mean 1.1; SD 1.7), mainly regarding company (23%), psychological distress (20%), and daily activities (14%). Family caregivers spent 150 minutes/day (median) providing support, and 44% had psychological distress unmet needs. Problems with access to or use of formal services, when present, were frequently due to attitudes or lack of knowledge of any or both members of the dyad.Discussion: The recruitment process was challenging, since the inclusion criteria were restrictive. Not claiming generalizability, we recruited a typical sample of Portuguese people with mild to moderate dementia and no significant formal community support. Levels and type of unmet needs found in some participants would call for formal support, were it not for problems regarding access or use.Conclusion: There are difficulties regarding timely access and effective use of formal care in dementia, along with relevant unmet needs.
KW - Caregivers
KW - Dementia
KW - Health Services Accessibility
KW - Needs Assessment
KW - Portugal
KW - OLDER-PEOPLE
KW - CAMBERWELL ASSESSMENT
KW - HOSPITAL ANXIETY
KW - ELDERLY CANE
KW - VALIDATION
KW - CAREGIVERS
KW - VALIDITY
KW - BURDEN
KW - STATE
U2 - 10.20344/amp.11136
DO - 10.20344/amp.11136
M3 - Article
C2 - 31166896
SN - 1646-0758
VL - 32
SP - 355
EP - 367
JO - Acta Medica Portuguesa
JF - Acta Medica Portuguesa
IS - 5
ER -