TY - JOUR
T1 - Information needs of early-stage prostate cancer patients: A comparison of nine countries
AU - Feldman-Stewart, Deb
AU - Capirci, Carlo
AU - Brennenstuhl, Sarah
AU - Tong, Christine
AU - Abacioglu, Ufuk M.
AU - Gawkowska-Suwinska, Marzena
AU - van Gils, Francis
AU - Heyda, Alicja
AU - Igdem, Sefik
AU - Macias, Victor
AU - Grillo, Isabel Monteiro
AU - Moynihan, Clare
AU - Pijls-Johannesma, Madelon
AU - Parker, Chris
AU - Pimentel, Nuno
AU - Woerdehoff, Herbert
PY - 2010/3
Y1 - 2010/3
N2 - Providing information to patients can improve their medical and psychological outcomes. We sought to identify core information needs common to most early-stage prostate cancer patients in participating countries.Convenience samples of patients treated 3-24 months earlier were surveyed in Canada, England, Italy, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Each participant rated the importance of addressing each of 92 questions in the diagnosis-to-treatment decision interval (essential/desired/no opinion/avoid). Multivariate modelling determined the extent of variance accounted by covariates, and produced an unbiased prediction of the proportion of essential responses for each question.Six hundred and fifty-nine patients responded (response rates 45-77%). On average, 35-53 questions were essential within each country; similar questions were essential to most patients in most countries. Beyond cross-country similarities, each country showed wide variability in the number and which questions were essential. Multivariate modelling showed an adjusted R-squared with predictors country, age, education, and treatment group of only 6% of the variance. A core of 20 questions were predicted to be essential to >2/3 of patients.Core information can be identified across countries. However, providing the core should only be a first step; each country should then provide information tailored to the needs of the individual patient.
AB - Providing information to patients can improve their medical and psychological outcomes. We sought to identify core information needs common to most early-stage prostate cancer patients in participating countries.Convenience samples of patients treated 3-24 months earlier were surveyed in Canada, England, Italy, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Each participant rated the importance of addressing each of 92 questions in the diagnosis-to-treatment decision interval (essential/desired/no opinion/avoid). Multivariate modelling determined the extent of variance accounted by covariates, and produced an unbiased prediction of the proportion of essential responses for each question.Six hundred and fifty-nine patients responded (response rates 45-77%). On average, 35-53 questions were essential within each country; similar questions were essential to most patients in most countries. Beyond cross-country similarities, each country showed wide variability in the number and which questions were essential. Multivariate modelling showed an adjusted R-squared with predictors country, age, education, and treatment group of only 6% of the variance. A core of 20 questions were predicted to be essential to >2/3 of patients.Core information can be identified across countries. However, providing the core should only be a first step; each country should then provide information tailored to the needs of the individual patient.
KW - Early-stage prostate cancer
KW - Patient information needs
KW - Patient education
U2 - 10.1016/j.radonc.2009.12.038
DO - 10.1016/j.radonc.2009.12.038
M3 - Article
C2 - 20116122
SN - 0167-8140
VL - 94
SP - 328
EP - 333
JO - Radiotherapy and Oncology
JF - Radiotherapy and Oncology
IS - 3
ER -