TY - JOUR
T1 - Information for Decision Making by Patients With Early-Stage Prostate Cancer: A Comparison Across 9 Countries
AU - Feldman-Stewart, Deb
AU - Capirci, Carlo
AU - Brennenstuhl, Sarah
AU - Tong, Christine
AU - Abacioglu, Ufuk M.
AU - Gawkowska-Suwinska, Marzena
AU - van Gils, Francis
AU - Heyda, Alicja
AU - Igdem, Sefik
AU - Macias, Victor
AU - Grillo, Isabel Monteiro
AU - Moynihan, Clare
AU - Pijls-Johannesma, Madelon
AU - Parker, Chris
AU - Pimentel, Nuno
AU - Woerdehoff, Herbert
PY - 2011
Y1 - 2011
N2 - Purpose: To describe decisional roles of patients with early-stage prostate cancer in 9 countries and to compare the information they rated important for decision making (DM). Method: A survey of recently treated patients was conducted in Canada, Italy, England, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Participants indicated their decisional role in their actual decision and the role they would prefer now. Each participant also rated (essential/desired/no opinion/avoid) the importance of obtaining answers, between diagnosis and treatment decision, to each of 92 questions. For each essential/desired question, participants specified all purposes for that information (to help them: understand/decide/plan/not sure/other). Results: A total of 659 patients participated with country-specific response rates between 58%-77%. Between 83%-96% of each country's participants recalled actually taking an active decisional role and, in most countries, that increased slightly if they were to make the decision today; there were no significant differences among countries. There was a small reliable difference in the mean number of questions rated essential for DM across countries. More striking, however, was the wide variability within each country: no question was rated essential for DM by even 50% of its participants but almost every question was rated essential by some. Conclusions: Almost all participants from each country want to participate in their treatment decisions. Although there are country-specific differences in the amount of information required, wide variation within each country suggests that information that patients feel is essential or desired for DM should be addressed on an individual basis in all countries.
AB - Purpose: To describe decisional roles of patients with early-stage prostate cancer in 9 countries and to compare the information they rated important for decision making (DM). Method: A survey of recently treated patients was conducted in Canada, Italy, England, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Participants indicated their decisional role in their actual decision and the role they would prefer now. Each participant also rated (essential/desired/no opinion/avoid) the importance of obtaining answers, between diagnosis and treatment decision, to each of 92 questions. For each essential/desired question, participants specified all purposes for that information (to help them: understand/decide/plan/not sure/other). Results: A total of 659 patients participated with country-specific response rates between 58%-77%. Between 83%-96% of each country's participants recalled actually taking an active decisional role and, in most countries, that increased slightly if they were to make the decision today; there were no significant differences among countries. There was a small reliable difference in the mean number of questions rated essential for DM across countries. More striking, however, was the wide variability within each country: no question was rated essential for DM by even 50% of its participants but almost every question was rated essential by some. Conclusions: Almost all participants from each country want to participate in their treatment decisions. Although there are country-specific differences in the amount of information required, wide variation within each country suggests that information that patients feel is essential or desired for DM should be addressed on an individual basis in all countries.
KW - early-stage prostate cancer
KW - patient information needs
KW - patient education
U2 - 10.1177/0272989X10395029
DO - 10.1177/0272989X10395029
M3 - Article
C2 - 21273630
SN - 0272-989X
VL - 31
SP - 754
EP - 766
JO - Medical Decision Making
JF - Medical Decision Making
IS - 5
ER -