TY - JOUR
T1 - Informal care for people with dementia in Europe
AU - Handels, Ron
AU - Hataiyusuk, Somboon
AU - Wimo, Anders
AU - Sköldunger, Anders
AU - Bakker, Christian
AU - Bieber, Anja
AU - Ciccone, Alfonso
AU - Defanti, Carlo Alberto
AU - Fabbo, Andrea
AU - Fascendini, Sara
AU - Frölich, Lutz
AU - Gervès-Pinquié, Chloé
AU - Gonçalves-Pereira, Manuel
AU - Irving, Kate
AU - Koopmans, Raymond
AU - Mecocci, Patrizia
AU - Merlo, Paola
AU - Michalowsky, Bernhard
AU - Peters, Oliver
AU - Pijnenburg, Yolande
AU - Ribeiro, Óscar
AU - Salbaek, Geir
AU - Schwarzkopf, Larissa
AU - Verbeek, Hilde
AU - de Vugt, Marjolein
AU - Woods, Bob
AU - Zanetti, Orazio
AU - Winblad, Bengt
AU - Jönsson, Linus
AU - ActifCare Consortium
AU - ICTUS/DSA group
AU - PLASA/DSA group
AU - RECAGE consortium
AU - RightTimePlaceCare Consortium
PY - 2025/1/1
Y1 - 2025/1/1
N2 - INTRODUCTION: Informal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe. METHODS: A secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or trial studies in community-dwelling persons with dementia. A mixed regression model was fitted to time spent on instrumental or basic activities of daily living using disease severity and demographic characteristics. RESULTS: Daily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment. Likewise, this was 1.2h and 2.7h for functional disability and 0.3h and 0.6h for behavioral symptoms in the same directions. DISCUSSION: Estimates can be used in both single- and multi-domain health-economic models for dementia in European settings.
AB - INTRODUCTION: Informal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe. METHODS: A secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or trial studies in community-dwelling persons with dementia. A mixed regression model was fitted to time spent on instrumental or basic activities of daily living using disease severity and demographic characteristics. RESULTS: Daily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment. Likewise, this was 1.2h and 2.7h for functional disability and 0.3h and 0.6h for behavioral symptoms in the same directions. DISCUSSION: Estimates can be used in both single- and multi-domain health-economic models for dementia in European settings.
KW - Dementia
KW - costs
KW - health-economic evaluation
KW - informal care
KW - resource use
KW - Humans
KW - Dementia/epidemiology
KW - Europe/epidemiology
KW - Female
KW - Male
KW - Activities of Daily Living
KW - Aged
KW - Caregivers
KW - Aged, 80 and over
KW - Cognitive Dysfunction
KW - Independent Living
KW - Severity of Illness Index
KW - Patient Care
U2 - 10.1016/j.tjpad.2024.100015
DO - 10.1016/j.tjpad.2024.100015
M3 - Article
SN - 2274-5807
VL - 12
SP - 100015
JO - JPAD-Journal of prevention of alzheimers disease
JF - JPAD-Journal of prevention of alzheimers disease
IS - 1
M1 - 100015
ER -